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Addison's Disease Message Board


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Low cortisol test
Dec 21, 2003
Hello! ( sorry for the mistakes but English is not my language)
I have a (very)low thyroid and are being treated since a year ago. As i felt much worse when starting Armour my dr. prescribed me prednisolon (was low in 24h urine test not addison) This made things slightly better (at least not worse) and now i am very slowly going up my thyroid med. But I still have a lot of adrenal symtoms(sick, weak, very low bloodpressure, can't have any stress, panicky,...Feel much worse after eating or when I am tired, I have times (after stress or when I'am tired that i feel terribly sick and can't see properly and have diaree (i saw here that these are signs of add.)My dr. told me to go up my pred. so now I take 12,5 mg (morning 5, noon 5, evening 2,5) But I would like to know exactly if my adrenals are the problem and how much I should take. So I asked my dr to order the test where you have to spit about five times a day in a tube and from that they can see how your adrenals are doing. Now i would like to ask the following: :confused: 1*Should I stop one day taking pred. for the test to see how much my adrenals are doing themselves? Or should I take the dose Itake now and see on the results if I should take more. I would prefer stopping for one day. Is that allowed? :confused: 2* Is the amound pred. I am taking not very high? Similar to Addison patients? Doesn't that mean that I have Addison?
I have a very good dr. who listens to my symptoms and tries to help me but he doesn't know that much about adrenal insuff. That's why i am triying myself to get some more info.
Thank you very much for any help!!!!
[QUOTE=ed33]My dr. told me to go up my pred. so now I take 12,5 mg (morning 5, noon 5, evening 2,5) But I would like to know exactly if my adrenals are the problem and how much I should take. So I asked my dr to order the test where you have to spit about five times a day in a tube and from that they can see how your adrenals are doing. [/QUOTE]

Are you taking prednisone or hydrocortisone? A replacement dose of prednisone is 5mg/day and you say you are taking 12.5mg/day. That is a large dose for addison's disease.

Since you are already taking a corticosteroid any test for your natural cortisol production will not be accurate. So the spit test is pretty much a waste. You have to taper your steroids down until you are completely off them for at least 2 weeks. The length of your taper depends on how much steroid you are taking and for how long.
Thanks for your reply.
I am taking prednisolon(is that the same as prednison?). I also realised that this is a very high dose but it does make me feel a bit better and my bloodpressure is still very low . That's why my dr told me to go up. [QUOTE=orion]So the spit test is pretty much a waste. You have to taper your steroids down until you are completely off them for at least 2 weeks. The length of your taper depends on how much steroid you are taking and for how long.[/QUOTE]

So which test would be showing me how my adrenals are doing? How do you all know how much to take? Can't I just take the test while taking the med. So I can see if I need more or less?
Is it not dangerous to just stop two weeks with pred.?
I thought it doesn't stay so long in your body and that's why you have to take it e few times a day so if you stop a day or two it should be out of your body, no?
Thanks a lot for your help!!
Ed





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