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Addison's Disease Message Board


Addison's Disease Board Index


Re: Stress
Feb 19, 2004
Hi Tzo:

When I read your post I could very much relate to your symptoms and feelings. I also have an underactive thyroid that is autoimmune (hashimoto's). I can't urge you strongly enough to find a good doctor that will listen and take your symptoms seriously. Now that I am diagnosed with addisons disease and on medicine I feel like I have a new lease on life. I used to think it must be my thyroid, or maybe this is what it feels like to get older. Now, I wake in the morning and actually feel rested, hardly any lightheaded episodes, no unrelenting fatigue and muscle aches, my hyperpigmentation has lightened, I actually have an appetite and can gain weight (I never thought I would be happy about gaining weight). My energy is not good, but I am hoping it will return somewhat eventually....it is better that it was before being diagnosed though. I haven't felt this good in years. Tell your doctor everything too...every little symptom. If you don't like the response search until you find a doctor that will listen and do the proper testing. If you do have addison's disease there is no reason to suffer because your doctor doesn't want to test you. Once you receive the proper hormone replacement you will feel so much better. Untreated you will only get sicker.

I was diagnosed with chronic fatigue and fibromyalgia too before being diagnosed with addisons. It was addisons all along. I don't have chronic fatigue syndrome or fibromyalgia...I was just lumped into the we can't figure out what is going on with her category. If you think you have addisons disease get tested.
Re: Stress
Feb 19, 2004
[QUOTE=gertie]Hi Tzu:

Hearing that you are from Britain I would recommend you look up on the internet the addisons disease organization there...... [/QUOTE]

Thanks very much for the advice gertie ..... I will look into what you have suggested and try a private doctor. I also want to ask you about the actual treatment .... It's cortisone isn't it? What is the long term effects of the type doctors use for this? Dunno if you get different types?? I know many have no choice in the matter if they need it .... but I just wondered about it causing osteoporosis and fluid retention is it ... that makes the face very round when on cortisone ...... I just remember my sister had what was called a 'moon face' as a child from cortisone for her asthma and by her thirties she had osteoporosis, but it was treated with Fosamax and she is ok now. Her ostioporosis was also put down to her bullimia in younger years, not just cortisone alone. So if you have any advice on this .... I would really appreciate it .... thanx very much :)
Re: Stress
Feb 20, 2004
Hi Tzu;

The endocrinologist I am seeing now has me on 5mg of prednisone 1 of fludrocortisone and 25 of dhea a day. And I take calcium citrate as a dietary supplement. There are different types of addisons. I need to take the fludrocortisone to keep up my blood pressure. I have primary autoimmune addisons. My dhea levels were non existant so I take that so those levels will hopefully balance out again. And the prednisone I think is what is the main replacement for the adrenals. My endo told me that since I am replacing what I can no longer produce I should not develop a moon face. It is only when you have working adrenals that you can run that risk. I hope he is right. No moon face so far. If you have addisons you need to take the medicine or the disease can be fatal.

I am 5'6" and was 103 when I was diagnosed. I looked like I had anorexia. My skin was an awful brown/orange color. I looked awful. So far I have gained 12 pounds back and look so much better now. And feel stonger and better every day. Like I said in my previous post I truly feel like a new person. I wake in the morning and feel rested (a feeling I haven't felt in almost six years), hardly any light headedness, no nausea, I can gain weight, no unrelenting fatigue and muscle aches (the worst), my hyperpigmentation has lightened, my blood pressure is at a healthy level. I do still do have a great love of salt and no hair under my arms or on my legs. I don't mind the hair part though.

Getting back to taking the steroids there are three I believe that people take hydrocortisone, cortisone or prednisone. My doctor put me on prednisone because he said it stays in the body very well and also he can put me on a much lower dose than if he put me on the hydrocortisone or cortisone....thus lowering my risk slightly for long term side effects. I was taking a much higher dose of cortisone originally 25 in the morning and 12.5 at night. My doctor said he doesn't want my body to get used to a high dose of steroid since I am relatively young 42. He wants to try to get me healthy on the lowest dose of steroid possible. I like his line of thinking. He did say I may not feel as good on the lower dose, and I did have a few symptoms at first reappear at first, but my body seems to have adjusted and I feel fine now. It is true that you can develop osteoperosis down the road, but if I don't take my medicine this disease can kill me. I do take calcium as a supplement to keep my bones healthy, drink lots of milk and once my stamina gets better I want to try working out with small weights to strengthen my muscles and bones.

I wish you all the best in finding a doctor and I can't urge you stongly enough to go to the UK addisons website. It is very informative. I learned the most about this disease there. You can read personal stories and I'm sure they could recommend a good physician for you.

Best Regards,
Lori





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