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Addison's Disease Message Board


Addison's Disease Board Index


Re: Stress
Feb 20, 2004
Hi Tzu;

The endocrinologist I am seeing now has me on 5mg of prednisone 1 of fludrocortisone and 25 of dhea a day. And I take calcium citrate as a dietary supplement. There are different types of addisons. I need to take the fludrocortisone to keep up my blood pressure. I have primary autoimmune addisons. My dhea levels were non existant so I take that so those levels will hopefully balance out again. And the prednisone I think is what is the main replacement for the adrenals. My endo told me that since I am replacing what I can no longer produce I should not develop a moon face. It is only when you have working adrenals that you can run that risk. I hope he is right. No moon face so far. If you have addisons you need to take the medicine or the disease can be fatal.

I am 5'6" and was 103 when I was diagnosed. I looked like I had anorexia. My skin was an awful brown/orange color. I looked awful. So far I have gained 12 pounds back and look so much better now. And feel stonger and better every day. Like I said in my previous post I truly feel like a new person. I wake in the morning and feel rested (a feeling I haven't felt in almost six years), hardly any light headedness, no nausea, I can gain weight, no unrelenting fatigue and muscle aches (the worst), my hyperpigmentation has lightened, my blood pressure is at a healthy level. I do still do have a great love of salt and no hair under my arms or on my legs. I don't mind the hair part though.

Getting back to taking the steroids there are three I believe that people take hydrocortisone, cortisone or prednisone. My doctor put me on prednisone because he said it stays in the body very well and also he can put me on a much lower dose than if he put me on the hydrocortisone or cortisone....thus lowering my risk slightly for long term side effects. I was taking a much higher dose of cortisone originally 25 in the morning and 12.5 at night. My doctor said he doesn't want my body to get used to a high dose of steroid since I am relatively young 42. He wants to try to get me healthy on the lowest dose of steroid possible. I like his line of thinking. He did say I may not feel as good on the lower dose, and I did have a few symptoms at first reappear at first, but my body seems to have adjusted and I feel fine now. It is true that you can develop osteoperosis down the road, but if I don't take my medicine this disease can kill me. I do take calcium as a supplement to keep my bones healthy, drink lots of milk and once my stamina gets better I want to try working out with small weights to strengthen my muscles and bones.

I wish you all the best in finding a doctor and I can't urge you stongly enough to go to the UK addisons website. It is very informative. I learned the most about this disease there. You can read personal stories and I'm sure they could recommend a good physician for you.

Best Regards,
Lori





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