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Addison's Disease Message Board


Addison's Disease Board Index


Hi there,

I've been extremely ill for 2 years. Started out with low energy and over two years has left me almost fully bed ridden. I was put on Florinef back in September...1mg. Been on it since than, no side effects, or weight gain. Now I'm on 7.5mg of cortisol per day. When should Ilook for results???

I got ill after living in a toxic home then getting a flu vaccine on top of being sick....have lost 30 pouunds, severe muscle aches and fatigue, lack of endurance, etc.

ACTH test was 16 pre stim and then one hour later was 30. Doc said it should have doubled. Saliva tests were severely depressed. 24 hour urine cortisol was 14...(normal range 8-50).


Just wondering how long to look for improvements..I'vebeen sick for a very long time. Doc may be working pregnenolone into equation....


Diagnosis: pre addison's disease but not full out addison's...also had a positive biopsy for vasculitis, doc says inflammation is out of hand due to underfunctioing adrenals

thanks!


P.S is the fact taht i did not have weight gain on Florinef significant? meaning ineeded it? doc prescribed it b/c my pressure was soooo low
My doc just moved me up to 10mg of cortef/day. With .1mg Florinef per day. I had ACTH serum and it was in normal ranges..Iwill have tos earch for the labs!

Everyone in my family is eager to see the cortef produce quick results...I didn't think it could happen over night. She started me on 2.5mg twice per day and now that is being moved to four times per day.

So far it has not disrupted sleep-I've been on it for one week.

Why no pregnenolone long term? B/c of the estrogen issue? Makes sense, Iwas just curious...

thanx!





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