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Addison's Disease Message Board

Addison's Disease Board Index


I just got back from my own incredibly frustrating doctor appointment. What are they thinking sometimes? This one told me that things happen in life, there are no answers and there are no effective treatments for anything elusive like I have anyway-not that she knew what is whas or cared to contemplate the possibilities. What a twit. I got so angry at her she didn't charge me for the appointment. Small graces.

I am not sure what to make of your doctor's comments but I agree with you that generally women aren't hospitalized for menopause. (!!) While it is true that estrogen is a steroid hormone, it comes primarily from the ovaries which shouldn't be affected by your low cortisol levels. But, that said, there is alot of cross over...people with autoimmune addison's disease of the adrenals can also often have early menopause because of autoimmune destruction of the ovaries. But-I almost wonder if your issue isn't your adrenals directly causing the addison's, but your pituitary, since your growth hormone is also low.

Regarding your reaction to armour...I don't know if this might contribute but if you are growth hormone deficient, you cannot effectively make T4 into active T3. Is there some chance that your T4 levels are normal but your T3 is low? If you kept taking more T4, I would think you wouldn't feel too good. Also, if you are trying to take armour without any cortef, you will definitely feel worse because increasing your thyroid function will lower your available cortisol and make you more addisonian.

Alot of endocrinologists believe that treating the other hormone deficiencies ahead of growth hormone will raise it...and in some borderline cases that is true. It is NOT true, however, if you were as substantially abnormal as you say. And, you really need everything in the right doses to get things balanced out-one affects another like cascade. If you were shown to have low cortisol levels on the ITT and low GH, it would seem logical that you might have a problem with your pituitary.

Most doctors, including endocrinologists just don't know much about the pituitary gland. It still shocks me silly to think that is true-but they are just so used to treating more common ailments, like diabetes and thyroid, that they don't have the experience or exposure to recognize big issues.

I don't know what your insurance situation is but I would recommend getting online and doing a search for pituitary experts across the country. This is a rare enough problem that you may ned to consider traveling to find answers. The money spent up front will be far less than you might spend visitng countless less experienced doctors. Also-you need to be able to get help soon!! There are pituitary centers in several states that are highly regarded. Los Angeles, Portland, Nashville are three places to start. You might want to do a search for Cushing's disease and check the recommendations of those with Cushing's disease on the message boards you find--these people have really good recommendations of doctors. (I don't think you have Cushing's, they are just good patients to get resources from)

My husband and I travel to see a doctor in Los Angeles. My husband had been to seven endocrinologists, even at teaching hospitals, before finally having someone run the right tests. The process was relatively quick once we went to the right kind of doctor. Our personal experiences involved searching with the words good and hormone and health. You need to say goodbye to this doctor and find someone who really knows their stuff when it comes to the pituitary. This is too devastating of a disease to just wait and hope a doctor will figure it out.

Let me know if I can offer any other info...I want you to get the help you so desperately need.

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