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Addison's Disease Message Board


Addison's Disease Board Index


I'm hoping someone can help me here, as I am at my wit's end with all of this....

I'm going to list my symptoms, and then the relevant tests that I have had and can you tell me if this sounds adrenal related? I'm hoping you can help me out because I can't get a doctor to test me properly. Also I am already hypothyroid (.05 levothyroxine for the last 5 years). My thyroid has just been tested and it is normal (TSH 1.36).

Here are my symptoms:

feeling like an ice-cube, especially hands, feet and nose, sometimes have to use hot water bottle all day, but can also get VERY hot in an instant. I sleep with 2 pairs of socks, nightgown and housecoat

Postural hypotension (very dizzy on standing up) confirmed by doctor

blood pressure has been as low as 76/37.

Rapid, pounding heart beat on standing up or going upstairs, or doing just about anything. Find if I eat alot of salt and drink 2-3 glasses of water, my heart pounding, lethargy and shortness of breath go away

shortness of breath

morning nausea and lack of appetite - mostly after period until ovulation

constipation and then I'll go 4 or 5 times in one day, diarrhea by the end of the day

lost 16 pounds over the last month and a half, and eat like a horse

EXTREME fatigue on some days, others it's better, very sleepy alot of times (which is UNUSUAL for me)

balance is off

brain is fuzzy

very thirsty, mouth is dry, tongue gets sore, eyes are VERY dry, skin is very dry (lotion 3 times a day)

seem to have a very dry throat - hoarse alot

peripheral neuropathy - burning in hands, arms, feet, legs and tinglies all over body including face

muscle twitching and cramps and weak muscles especially hand grip

roaming joint pain

on and off hypoglycemic episodes when I haven't eaten or when I've eaten something sugary

sorry (TMI) but I'm losing my pubic hair, some armpit hair and lots of hair on my lower legs. Also the private parts down there are quite dark and my husband doesn't call me pale anymore, used to be a standing joke with us

Not all of the above symptoms happen at the same time, they will come and go in groups.

Now, I have had a random cortisol blood test at around 4:00 pm (not fasting) and it was 483 Range was 170 - 540 which is in the high range.

Any ideas at all??? They've been testing me for Sjogren's disease because of the dry eyes, mouth and skin, but so far all tests are negative.

Please help me out here, I'm terrified of being lumped into a Chronic Fatigue Syndrome group where I don't get any help or medication, but only brush-offs.

Sherry
My TSH was 1.38 Range .35 - 5.00 mU/L
My T4 Free was 14 Range: 10 - 20 pmol/L

They did not do the T3 test.

However, I had another test, where my TSH was .82 (Range .3 - 4.7 MU/L)just the week before.

I have alot of the symptoms of both diseases, but the dry eyes, mucous membranes, mouth and skin point to sjogren's (and of course, all the tests are negative)

They have done a random cortisol which was 483 (Range 170 - 540 nmol/L) and a DHEAS which was 4.8 (Range 1.8 - 7.7). These are perfectly normal results. However, my testosterone was 1.1 (Range 2.1 - 8.7 pmol/L). I'm really beginning to think that Sjogren's is the answer, even though the tests are negative.

Have you ever heard of normal random cortisol and DHEAS and a person still having addison's?

Sherry





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