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Addison's Disease Message Board


Addison's Disease Board Index


Hi, I'm new to this board and not really sure what is going on with me. I posted on the digestive disorders and on the high/low blood pressure board. The more I read, the more I'm finding out about what might be wrong. Sorry this is so long, but I'm hoping and praying that someone will have some advice for me.

I am 36 years old, have three kids and I'm happily married. I've been sick for many years. The problems really started when I was pregnant with my first child at 18. It was a normal pregnancy, until the 6th month when I had a fever of unknown origin (105.8) that sent me into premature labor. After that, it was all downhill. I started getting sick all the time with colds, flu, strep throat, chronic yeast and bladder infections, mouth sores, allergies (that I didn't have before) and so many other things. I got salmonella when I was 23 and nearly died from it. (misdiagnosed)

As I got older, fatigue set in, as well as bouts of extreme leg pain. I was diagnosed with IBS at 25. I kept gallon size baggies of ice to take to the restroom with me and cried with every BM. The IBS miraculously disappeared after they found I had endo and adenomyosis and removed my uterus at 29.

I was tested for hypothyroid, Lupus, MS, Sjogren's, RA, can't even recall everything. My doctor said he just new I had an immune disorder, but all tests were negative. I was diagnosed with GERD, Reactive Arthritis and hypoglycemia. I had to have an ovary out a year after the hysto due to a bleeding cyst. (I had polycystic ovarian syndrome) I have fibrocystic breast disease and had a 2cm adenoma removed from my neck 4 years ago and a 6cm fibroadenoma removed from my breast two years ago.

Here's a list of my symptoms:
Low BP 90/60 down to 70/40 at times
Low temp. 96.5 on average
Hair is falling out
gallbladder spasms
abdominal pain
nausea & vomiting
intense pain in my lower back, butt and down my legs
kidneys feel like they're throbbing
spasms in my legs and they feel like I have no more muscles
headache
dizzy
extreme fatigue (especially in the morning and afternoon)
low blood sugar episodes (have to cram food in my mouth, sweating, feel like I'm going to pass out)
extreme thirst
salt cravings
moody(biting everyone's head off, husband says I'm hormonal)
depressed
lost 10 pounds in two weeks (and it's not from not eating...I HAVE to force myself to eat with hypoglycemia)
skin has changed in short time (lots of spider veins everywhere and vitiligo on my arms)

I have found that the Licorice Root I take for GERD raises my BP by 20 points! My BP dropped to 76/46 last Saturday morning and I took the licorice root. Withing 30 minutes, my BP was 90/53. The hypoglycemia is getting worse. I used to have problems once or twice a month, but now it's almost daily. My kids know when to run and get the orange juice and candy by just looking at me. I'm afraid one day I will just pass out and not wake up.

I now have no insurance and I've been through the ringer with doctors. I have an appointment tomorrow with a gastro about my gallbladder and I'm scared that I'm going to get the run around about the other problems again. They always ask me how my home life is and want to prescribe Prozac. It makes me want to scream.

Does any of this sound like Adrenal problems to any of you??? Should I be more proactive and ask for specific tests? Does anyone live in Texas and have a WONDERFUL endocrinologist that listens and is willing to work with someone to find a cause? I'm just so tired of being misdiagnosed and told it's all in my head. This is getting worse and I'm really nervous.

Tina
Hi Tina,
I just finished reading your letter and I could really feel your pain and frustration.
I was diagnosed with Addison's Disease when I was 19 yrs. old. I'm now 38. It is possible to live a normal healthy long term life with Addison's.
As I was reading about the symptoms you described having, I've had similar symptoms as well. I've listed them below so you can compare them to yours.

[COLOR=Navy]These are some of my early signs before being diagnosed.[/COLOR]

~Rapid weight loss
~tired and sleepy all the time
~No energy
~Skin appears tan as if out in the sun
~Darker pigmentation in areas of the skin usually around the knuckles on the hands, feet, and elbows.
~Low blood pressure along with constant lightheadedness, dizzy and weak.
~Constant vomiting
~Trouble concentrating and difficulty understanding things
~balance or hand eye coordination way off
~salt & sugar cravings
~back, neck, and leg pain

I was first diagnosed with Hypothyroidism but Drs. still had no clue why I was still sick. Then, I had a Doctor who told my parents I was sick because I had mental problems!! AND..that I was either taking drugs or misusing the thyroid medication as a weight loss method!! Can you believe that! This Dr. put me in the hospital and for 3 weeks he kept me doped up on psychotic drugs. Don't ever let a Dr. tell you it's all in your mind ok?! This happens with lupus and chronic fatigue suffers as well.

Tell your Doctor to run a blood test and specifically check your potassium levels as well as your sodium levels. If the blood work show's high potassium in your system..there's a good chance you have Addison's Disease.

Usually thyroid disease (hypo mostly) and diabetes work hand to hand with Addison's disease. The disease is an antibody that's working it's way throughout your body attacking vital organs and shutting them down. Usually starts with the adrenal glands, then to the thyroid (causing the skin darkening and pigmentation), and so on. When it's diagnosed and treated properly, the cycle can be halted. However, there is no cure yet.

If you ever need to talk, please feel free to email me. I'd love to talk to you.

Take Care hun!
Shelly :angel: My email address: [ [b] please carefully review the posting rules - no emails [/b] ]

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