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Addison's Disease Message Board


Addison's Disease Board Index


Christy,

Thank you SO much for replying! I went to the gastro doc today and he ordered blood work and an ultrasound of my abdomen. I voiced several concerns over my adrenals and thyroid, but I don't think he took me too seriously. He did say that I MIGHT have a thyroid problem and he ordered a TSH. I asked about the T3 and T4 and he said it wasn't necessary because the TSH is HIGHLY sensitive to catch thyroid problems. He said that if I had a thyroid problem I would be gaining weight, not loosing weight. I'm pretty much convinced that none of the tests will show anything. They never do and they're the same ones...over...and over...and over...

My BP was really low, and wouldn't you know it...by the time I got to the appointment I was sweating, felt like my head was pounding and my BP was 121/79. It's NEVER over 90/60! It's probably anxiety because I get nervous going to the doctor.

D/FW is a 3 1/2 hour drive for me. I was hoping to find somone in central Texas, but I'm willing to travel if that's what it takes to get better. I too, think I have hormonal issues. I did sign up to take part in a study on Bioidentical Hormones in Tyler. It doesn't start till June, but they check EVERYTHING! Estrogen, progesterone, DHEA, Cortisol and they compound an individualized cream for you. I just wish it were sooner.

My girls used to get sick every time they ate pasta, bread, etc... They were diagnosed with gluten enteropathy. Now they hardly ever get a stomach ache, unless they get hidden gluten in something.

Thanks again for replying! It's nice to know someone else has been through what I'm going through and can offer advice. I may need to get a list of tests I need for thyroid and adrenals and just demand that they be done. My legs and back are hurting really bad and I'm achy all over. I call it a flare-up. It can last a week, or three months, and it only gets better with prednisone. I usually tough it out as long as I can to see if it will go away on its own, but it never does. I don't want to take prednisone if I need more tests either. They did a bunch of bloodwork for Lupus and RA a few years back after I had been on prednisone for two weeks. I don't think you are supposed to be on steroids for tests like that?

The brain fog is not fun! It's like watching your life happen on a movie screen and walking around with your head in the clouds. I have had entire weeks go by that I don't even recall what I did. Have you ever gotten in the car, and after you get where you're going, realize that you don't remember driving there? :eek:

I will post test results when I get them.

Thanks again!
Tina





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