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Addison's Disease Message Board


Addison's Disease Board Index


Dear Ukiahvalleymom:

You sound like a textbook case of Addison's Disease! The dizziness is refered to as postural hypotension (very common with Addison's). The dark circles can be and probably ARE a sign of dehydration or salt wasting. This is what I'd ask for to cut to the chase:

Blood test for [B]aldosterone[/B] level, [B]renin[/B], [B]sodium[/B], [B]potassium[/B], [B]ACTH plasma level[/B], sodium level in urine (if possible, to evidence salt wasting). Try to secure an [B]ACTH stimulation test[/B] ASAP (may ask you to wait, as you've been on the cortisol). The dark skin suggests HIGH ACTH in plasma; it's high to attempt to ask your adrenals to make more cortisol. This is life threatening, as I'm sure you must know. You should probably look up the signs of adrenal crisis on the medical sites, as well. Wish I was versed enough to site them. SOME are: vomiting, nausea, lower back pain, LOW blood pressure, weakness, fever (at times); passing out.

Please seek help quickly! ~ :wave: Tracy
[QUOTE=Keraly]Dear Ukiahvalleymom:

You sound like a textbook case of Addison's Disease! The dizziness is refered to as postural hypotension (very common with Addison's). The dark circles can be and probably ARE a sign of dehydration or salt wasting. This is what I'd ask for to cut to the chase:

Blood test for [B]aldosterone[/B] level, [B]renin[/B], [B]sodium[/B], [B]potassium[/B], [B]ACTH plasma level[/B], sodium level in urine (if possible, to evidence salt wasting). Try to secure an [B]ACTH stimulation test[/B] ASAP (may ask you to wait, as you've been on the cortisol). The dark skin suggests HIGH ACTH in plasma; it's high to attempt to ask your adrenals to make more cortisol. This is life threatening, as I'm sure you must know. You should probably look up the signs of adrenal crisis on the medical sites, as well. Wish I was versed enough to site them. SOME are: vomiting, nausea, lower back pain, LOW blood pressure, weakness, fever (at times); passing out.

Please seek help quickly! ~ :wave: Tracy[/QUOTE]
Thank you, sure hope you're still here.... :wave:
There has been blood work drawn for CBC, CMC and urinalysis done at the hospital, decided to have reports sent to both my pcp and my Fibro and Fatigue specialist; Dr Holtorf.

My husband took me to my pcp two days later...my blood pressure was 80/50, temp 96.2, my doctor did nothing and sent me home...I could barily stand up...my husband was so scared, he thought this was it!

On the Monday, Dr Holtorf checked on me, and went over the results of the Lab work with me, listened to my symptoms and immediatly called in a prescription for Fludrocortizone, Hydrocortizone, and Toprol, I had already been taking a low dose of natural hormone Cortisol, since Dec '04. He also put me on medical leave from work.

Yes, I was in an Adrenal crisis, dx with Hypotension as well...it took 8 weeks to begin to feel good again, I'm sorry I never saw this post...I made a mistake and went back to work the end of July...in the first week symptoms started to worsen. Within 4 weeks, I was too ill to work, blood pressure and temp dropped along with all the other symptoms again...can't afford to loose any more weight or let my body shut down again...back on medical leave.

To get you caught up, it has now been 13 more weeks, I do have good news if you have followed my posts on Fibromyalgia, Chronic Fatigue, or Environmental [U]Illnesses or (Issues)???[/U]

I am back on the mend, started feeling much better after about 8 weeks of treatment, staying our of the office and rest. Much more improvement over the last 2 weeks of treatment. Have gained 12lbs so far.

Back to exercising! Haven't been able to workout since the March of '04, (really since November of '03) Did not go back to work, still on medical leave, but feeling great!!

uvm :bouncing:





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