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Addison's Disease Message Board


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Feb 24, 2006
I have posted on my recent problems in both the epilepsy board and the Lyme Disease board. I've had some really strange things going on. It all started on Feb 1st. I had a GM seizure at work. My blood sugars were perfect when this happened so it was not attributed to my diabetes. Between the 1st and the 11th I had 2 more seizures. I have been waiting for my appointment to get here to have an MRI and EEG. The neuro. put me on Lamictal, 25mg, working up to 100mg. Since starting the medication I haven't had anymore seizures. I do have strange "episodes" of feeling like my BS is very low when it is perfect (115 to 140), having a floating feeling, strobing type effect in my vision, etc. Additionally, I am always tired. On top of the diabetes I also have Hashimoto's. My thyroid was removed in '99 but they left my parathyroids. I have been on Synthroid ever since. I am close to positive that my adrenal function has never been tested. (I mention this b/c I noticed in the other thread that it should have been done before anything else was.)

Counting my parents and siblings there is a total of 5 of us. Mom has Grave’s and Epilepsy, Dad has Rheumatiod Arthritis, Sis has Psoriasis, I have Hashimoto’s, Type 1 Diabetes, Psoriasis, and Herpes Simplex, and had constant problems with my tonsils and appendix up through my teen yrs. I don’t know what my brother has b/c he refuses to go to the dr. Scared, I guess. Needless to say, my family has a high ratio of autoimmune.

So, I guess my biggest question is should I consider Addison’s? I have read a lot here lately about what my symptoms could be related to. I want to be totally prepared when I see my neurologist. What questions to ask, what concerns should be addressed. I have found several things that cause my symptoms. I am fully aware that some autoimmune diseases “mirror” others and that any number of things could have 1, 2 even 3 of the symptoms that I’m having and have no relation to what I have.

Things that I am considering are: Epilepsy, Hyponatremia, Addison’s, Lyme Disease, Encephalits, CCM or AVM. I am scared to death of what this COULD be. I’m more afraid of the diagnosis than of the actual problems. Some of my symptoms have been going on for a couple of years but could easily be attributed to my diabetes or thyroid disease. The seizure activity is new and since I’ve started having them I have several other new, very bothersome things happening. I smell things that no one else can, I have this “strobe” effect several times a day, eye pressure, hand tremors, and some memory loss. I DO know that I don’t have a tumor or bleeders in my brain. They ran a CT in the ER when I had my last seizure. I have had a painful, burning type sensation in my lower back for about 3 mths. on the left side.

I am worrying myself to death and reading entirely too much, I know. But having to wait for all these test is very stressful and the only thing I know to do to relieve some of that stress is to educate myself on what to be prepared for. Anything you can tell me will help.





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