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Addison's Disease Message Board


Addison's Disease Board Index


Dear Grinchy,

I can surely sympathize in your quest for help for your daughter. How old is she? My son was 14 when he rather suddenly took chronically ill. It took us 2-1/2 years to get him diagnosed.

You might also request that they measure blood levels of renin and aldosterone and do an ACTH stimulation test (if Orion didn't already mention that one!). There are no ill side effects of these tests, and they are both painless (save the needle *****) and safe!

My son had very similar symptoms, was exhausted all the time, appeared dehydrated (dark circles around the eyes), dizzy upon standing or turning his head side to side, lacking good balance, stumbling into walls at first, slow gait, poor appetite, upside-down sleep cycles, low cortisol (5.6 before ACTH stim test), brain fog, lack of tolerance to exercise... Finally after two and a half years and 20 doctors not yielding a diagnosis, we went to the Mayo Clinic (our insurance allowed us to do so, and paid part of our costs). They diagnosed him with something which has only been recognized for about 4 years, called POTS (postural hypostatic tachycardia syndrome). He now takes salt pills, drinks 3 liters of water and Gatorade per day, takes calcium and vitamin D because he's been lying around the house for such a long time without his proper amount of sunshine. And they have recommended gradual return to exercise in the form of walking and stretching.

I hope this will help you find your answer, :wave: Tracy





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