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Addison's Disease Message Board


Addison's Disease Board Index


Well for about 2 years they had no clue what was wrong with me. I was working out one day and I passed out. I went to numerous amount of doctors and they kept saying nothing was wrong with me. They finally sent me to do a tilt table test and I almost passed out while doing that. So then they sent me to a specialist in POTS. But my symptoms basically were passing out, irregular heartbeat, fast heartbeat and any time I tried to walk upstairs or walk up hill I felt like/or would pass out. Anytime that I get stressed my symptoms get worse. Recently it got really bad...everytime I got up to do anything I would pass out. I could barely make it to the bathroom and I couldn't stay hydrated for anything! So I went to my family doctor and he suggested that I get tested for Addisons disease. He said it has alot of the same symptoms as POTS. So I got tested but I didn't have that. So I would suggest getting tested for Addisons also. That is treatable unlike POTS. I wish you good luck and if you have anymore questions let me know! I am now doing a lot better and I want to help and talk to people that are going through the same thing! What kind of test are they planning on doing??
Hello to all. I'd never even thought about the fact that POTS and addison's have such similar symptoms. Mainly because I didn't think I had POTS, but thought I had vaso-vagal syncope.

But I've always been heat-intolerant, sweated really badly no matter what the temperature, even took salt tablets as a kid [since my father had addison's, he always had a stockpile, and I just used his].

In high school I can remember standing at attention on a football field [practicing drill squad moves] and falling down in a dead faint after maybe 3 minutes. And I always prefered to squat down, rather than stand straight up, if I was going to be in the same place for longer than a few minutes.

Actually, after I was diagnosed with MS in 2000, and started researching on-line, I came across all the various medical terms for fainting, and the slightly different reasons and symptoms of each. I settled on neurally-mediated hypotension because, with MS, obviously some of my neurons are mis-firing.

Probably should quit wondering about it, and ask for an ACTH stimulation test and a tilt table test and some of the other diagnostic tools, and find out for sure what I have. But the feedback on this message thread has been a big help to me. Thanks.
I have POTS also but I've been looking into other things because even though my blood pressure and heart rate are stable because of my Proamatine & Florinef, I still feel sick. I feel exhausted and out of it even when my bp is fine. That's when I came across Addison's and you're right, a lot of the symptoms are the same. I was really surprised. The thing that really got me thinking I have it is because I don't have a menstrual cycle and there has never been an explanation as to why.

But anyway, I was diagnosed with POTS 2 years ago and its a difficult diagnosis or atleast it has been for me because the medicines haven't allowed me to return to my life. But you're right, salt is really helpful and I don't eat it as much as I should so thanks for the reminder!
Before I started my medicines my blood pressure was dropping as low as 80/30. After I took them it remained pretty much perfect, 120/80. Every once in awhile I'll have a spike and I stand up to get it to go back down. The highest it ever went was 160/100 but I'm told that doesn't happen to most people and as long as you're healthy, it's not dangerous.
I feel worse when I stand but I've also had symptoms sitting. I know a few people who take Proamatine and nobodys had any real problems with it. You just need to monitor your blood pressure while on it and I would increase it gradually. Your doctor should take an ultrasound and other tests of your heart to ensure that it's healthy and that everything's okay before you take the Proamatine. I used to be very concerned when my pressure went up that high but my doctor reassured me that high blood pressure only becomes a problem when it's consistent and if your heart isn't in good condition. If I were you, I'd write down a list of questions about it and ask your doctor - that way you'll have more peace of mind about it.

I take 10mg 3.5 times a day. Some people take more, others much less. It all depends on what your doctor thinks you need.

For me, the benefits have outweighed the negatives. I no longer faint or get as lightheaded and like I said, my bp is stable now so it was worth it for me.
[thank you.......QUOTE=dreemilyn;2999298]I feel worse when I stand but I've also had symptoms sitting. I know a few people who take Proamatine and nobodys had any real problems with it. You just need to monitor your blood pressure while on it and I would increase it gradually. Your doctor should take an ultrasound and other tests of your heart to ensure that it's healthy and that everything's okay before you take the Proamatine. I used to be very concerned when my pressure went up that high but my doctor reassured me that high blood pressure only becomes a problem when it's consistent and if your heart isn't in good condition. If I were you, I'd write down a list of questions about it and ask your doctor - that way you'll have more peace of mind about it.

I take 10mg 3.5 times a day. Some people take more, others much less. It all depends on what your doctor thinks you need.

For me, the benefits have outweighed the negatives. I no longer faint or get as lightheaded and like I said, my bp is stable now so it was worth it for me.[/QUOTE]
Hello I am from Missouri. I just started seeing a Dr. who treats POTS. I am on florinef and Toporal. Now I have been haveing symptoms since I was 15. It took them a while to figure it out. I am now in College, and its hard to get up in the Morinings so i don't have Morning classes. A lot of my friends kind of look at it as a sickness, thinking i am just sick a lot. So i was just wondering how you deal with symptoms, and life.
Thanks
I've had to make alot of adjustments in my life unfortunately since the condition started for me. I don't work or go to school at the moment although recently things have gotten a little better for me for whatever reason so I'm slowly moving toward doing more. I'm glad you found a doctor who specializes in POTS; that will be extremely helpful. For me, the Proamatine has been a real lifesaver - I no longer faint but as I said before I tire easily and feel weak alot of the time. Make sure to load up on salt and drink as much water as you can or Gatorade. The compression stockings are a good idea too. Propping your legs up when you're feeling symptomatic helps. Exercise is important too although alot of people with POTs have trouble tolerating it. Just do as much as you can but don't overdo it...my doctor told me that any type of pool exercise is GREAT for circulation even just walking back and forth in the pool is a good idea. Mornings are rough on me too for whatever reason. I will say though, if I have a day where I don't feel good and sit or lay around all day I tend to feel worse so you do have to push yourself to a certain extent but you have to learn your limits which is really tough in the beginning. Things WILL get better and there is a lot of research going on right now about this. You'll improve within time. ::Hugs::
I'm part of a support group that has been very helpful to me but I just read that I'm not allowed to post the name of it on here unfortunately. :(
Thinking of you!
I was diagnosed with POT"S a while ago.

Just to give you some background; prior to getting ill I was a perfectly healthy 26 year old 5’6”, 115 lbs, exercised regularly, eat very well and had (and continue to have, lol) a wonderfully happy marriage. Needless to say, our trip to Cambodia changed everything.

Two weeks prior to our departure:

My husband and I received multiple vaccinations witch made both my husband and I ill. The shots that we got were: Hepatis A, Hepatitis B, Tetanus/Diph, Thyphoid, Measles, Japanese Encephalitis and Malaria pills.

We arrived in Phnom Penh first, I took Malarone (Malaria pills) two days before leaving to Seim Reip and had a very nasty reaction. Forty minutes to an hour after taking it I became
dizzy, shaky, weak and nocuous. My reaction lasted almost twenty four hours and I did not feel completely well for two days.

A week and a half later I became extremely ill, cold sweets in 100 degree humid weather, nauseous, diaries, stomach pain, fever and light headedness. Two days later 8/5/07 I was hospitalized at Royal Angkor International Hospital.

I was given Buscopan (Dispan), Electrolyte powder, Fasigyn (Amtiba), Lexinor (Norflox), Tylenol,smecta powder, IV fluid, N.S.S 0.9 (B) 500 ML INJ, N.S.S. 0.9(G) 5 MI Inj, Rocephin Iv ( 1 GM) (Ceftriazone) Ing and IV fluid.

I was diagnosed with acute amoebic dysnentery, gastroenteritis of presumed infectious origin and Hypokalaemia.


While in the emergency I started having heart palpitations that continued of and on through out the remaining of my trip. As soon as I landed back in America I went straight to the emergency room. They gave me Flagel and sent me home. I then visited my regular doctor around 10 times went to a gastrointestinal doctor 4 times, an endocrinologist, a nephrologists and an electro cardiologist. Not to mention visited 2 infectious disease doctors and was rushed to the emergency around 5 times.

It got to the point that I could, no longer walk, stand or sit. I could only lay down and if I moved my head my heat rate would jump up to 170 beats a minute. If I did attempt to stand my blood pressure would plummet. My stomach hurt, blood was in my stool and vomit. I had severe night sweats. I was cold and shaky all the time and my vision was doing strange things. Not to mention I had low grade fevers and a slightly elevated white blood count. My doctor in so many words apologized for not taking my complaints seriously and said she did not know how to help me and suggested I get help as soon as possible.

A very nice infectious doctor saw me and had me immediately put into the Emergency room. I was given IV fluid with lots of potassium a good dosage of beta-blockers and Midodrine Three days later I was sent home still sick, drugged up but able to stand.

I was drugged up still having cold night sweats, low-grade fevers, black stools, pain in my lower right abdomen, stomach,naucious, cold shaking episodes, and weird vision at times, but I was able to stand and walk

It got worse; at times I would have red and purple blood coming out with my stools not to mention I could see everything I ate. At this point I became very desperate and in my research found a doctor by the name of William P, Stuppy. He was the first doctor that was able to truly help me. In 5 minutes of meeting him he said I had parasites and was not digesting my food. He strapped a heart monitor like vest on me and soon after diagnosed me as having dysotonomia (postural orthostatic tachycardia syndrome. My tests came back positive for parasites, not to mention my cortisol levels where extremely high and I was also suffering from adrenal fatigue. I was given Allinia to kill the parasites and a cream to help balance my hormones. I was also given proboscis and told to take colostrums. Soon after I was able to get off the beta blockers and Midodrine. I was still not 100 percent, but I was feeling a lot better.

A couple months later I had 3 cold, shaking seizer like episodes one in witch I passed out. I was hospitalized. Dr. Stuppy ran numerous tests on me. the only thing we found was an abnormality of my right ovary. My right ovary was fused to my uterus wall and had a cyst like structure. We think the infection from my intestines spread to my right ovary. Around this time my blood pressure started to drop again on standing and my heart started to race again upon standing. The electrocadiologists put me on Florinef to slow my heart rate and raise my blood pressure.

One day I was in Whole Foods and I chanced upon a book by the name of Adrenal Fatigue by James L Wilson. I changed my diet and stopped eating sugar, fried foods, white bread, white rice, overly processed foods, hydrogenated and partially hydrogenated oils. I started eating organic vegetables and fruit. I started taking fish oil and taking more vitamin supplements

I contacted the website 4 adrenal fatigue and asked for a list of doctors, a nice woman gave me three names. I called and made an appointment. They found I had fructose sensitivity and and various vitamin deficiences. I stopped using honey as a sweetner,stoped drinking fruit juices and I eliminated high fructose fruites. I started taking Dr. grade vitamins along with a multiple vitamin. With out asking my doctors I gradually stopped taking my florinef (not recomended)and a moth after my blood pressure started to rise.

I visited Dr. Stuppy a few day’s ago and we are retesting my cortisol and hormone levels, along with double checking 4 a parasite or 2.

I no longer have POT’S, but I am still working out a few glitches. I am still a patient of Dr. Stuppy. He is the best Dr. I have ever met and is recommended by the National Dysautonomia Research Foundation. I found out about him through this patients report.Postural Orthostatic Tachycardia Syndrome, Patient's Report
PS. Indi is my nick name
William P. Stuppy, M.D., F.C.A.P., F.A.C.P., F.A.C.G.
1136 W. Sixth St.
Suite 401
Los Angeles, CA 90017

Specialty: Gastroenterology; Heart rate variability (HRV) and esophagogastric pH. GERD (gastroesophageal reflux), IBS (Irritable Bowel Syndrome), Panic Disorder, and PTSD.





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