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Addison's Disease Message Board

Addison's Disease Board Index

I was diagnosed with POT"S a while ago.

Just to give you some background; prior to getting ill I was a perfectly healthy 26 year old 5’6”, 115 lbs, exercised regularly, eat very well and had (and continue to have, lol) a wonderfully happy marriage. Needless to say, our trip to Cambodia changed everything.

Two weeks prior to our departure:

My husband and I received multiple vaccinations witch made both my husband and I ill. The shots that we got were: Hepatis A, Hepatitis B, Tetanus/Diph, Thyphoid, Measles, Japanese Encephalitis and Malaria pills.

We arrived in Phnom Penh first, I took Malarone (Malaria pills) two days before leaving to Seim Reip and had a very nasty reaction. Forty minutes to an hour after taking it I became
dizzy, shaky, weak and nocuous. My reaction lasted almost twenty four hours and I did not feel completely well for two days.

A week and a half later I became extremely ill, cold sweets in 100 degree humid weather, nauseous, diaries, stomach pain, fever and light headedness. Two days later 8/5/07 I was hospitalized at Royal Angkor International Hospital.

I was given Buscopan (Dispan), Electrolyte powder, Fasigyn (Amtiba), Lexinor (Norflox), Tylenol,smecta powder, IV fluid, N.S.S 0.9 (B) 500 ML INJ, N.S.S. 0.9(G) 5 MI Inj, Rocephin Iv ( 1 GM) (Ceftriazone) Ing and IV fluid.

I was diagnosed with acute amoebic dysnentery, gastroenteritis of presumed infectious origin and Hypokalaemia.

While in the emergency I started having heart palpitations that continued of and on through out the remaining of my trip. As soon as I landed back in America I went straight to the emergency room. They gave me Flagel and sent me home. I then visited my regular doctor around 10 times went to a gastrointestinal doctor 4 times, an endocrinologist, a nephrologists and an electro cardiologist. Not to mention visited 2 infectious disease doctors and was rushed to the emergency around 5 times.

It got to the point that I could, no longer walk, stand or sit. I could only lay down and if I moved my head my heat rate would jump up to 170 beats a minute. If I did attempt to stand my blood pressure would plummet. My stomach hurt, blood was in my stool and vomit. I had severe night sweats. I was cold and shaky all the time and my vision was doing strange things. Not to mention I had low grade fevers and a slightly elevated white blood count. My doctor in so many words apologized for not taking my complaints seriously and said she did not know how to help me and suggested I get help as soon as possible.

A very nice infectious doctor saw me and had me immediately put into the Emergency room. I was given IV fluid with lots of potassium a good dosage of beta-blockers and Midodrine Three days later I was sent home still sick, drugged up but able to stand.

I was drugged up still having cold night sweats, low-grade fevers, black stools, pain in my lower right abdomen, stomach,naucious, cold shaking episodes, and weird vision at times, but I was able to stand and walk

It got worse; at times I would have red and purple blood coming out with my stools not to mention I could see everything I ate. At this point I became very desperate and in my research found a doctor by the name of William P, Stuppy. He was the first doctor that was able to truly help me. In 5 minutes of meeting him he said I had parasites and was not digesting my food. He strapped a heart monitor like vest on me and soon after diagnosed me as having dysotonomia (postural orthostatic tachycardia syndrome. My tests came back positive for parasites, not to mention my cortisol levels where extremely high and I was also suffering from adrenal fatigue. I was given Allinia to kill the parasites and a cream to help balance my hormones. I was also given proboscis and told to take colostrums. Soon after I was able to get off the beta blockers and Midodrine. I was still not 100 percent, but I was feeling a lot better.

A couple months later I had 3 cold, shaking seizer like episodes one in witch I passed out. I was hospitalized. Dr. Stuppy ran numerous tests on me. the only thing we found was an abnormality of my right ovary. My right ovary was fused to my uterus wall and had a cyst like structure. We think the infection from my intestines spread to my right ovary. Around this time my blood pressure started to drop again on standing and my heart started to race again upon standing. The electrocadiologists put me on Florinef to slow my heart rate and raise my blood pressure.

One day I was in Whole Foods and I chanced upon a book by the name of Adrenal Fatigue by James L Wilson. I changed my diet and stopped eating sugar, fried foods, white bread, white rice, overly processed foods, hydrogenated and partially hydrogenated oils. I started eating organic vegetables and fruit. I started taking fish oil and taking more vitamin supplements

I contacted the website 4 adrenal fatigue and asked for a list of doctors, a nice woman gave me three names. I called and made an appointment. They found I had fructose sensitivity and and various vitamin deficiences. I stopped using honey as a sweetner,stoped drinking fruit juices and I eliminated high fructose fruites. I started taking Dr. grade vitamins along with a multiple vitamin. With out asking my doctors I gradually stopped taking my florinef (not recomended)and a moth after my blood pressure started to rise.

I visited Dr. Stuppy a few day’s ago and we are retesting my cortisol and hormone levels, along with double checking 4 a parasite or 2.

I no longer have POT’S, but I am still working out a few glitches. I am still a patient of Dr. Stuppy. He is the best Dr. I have ever met and is recommended by the National Dysautonomia Research Foundation. I found out about him through this patients report.Postural Orthostatic Tachycardia Syndrome, Patient's Report
PS. Indi is my nick name
William P. Stuppy, M.D., F.C.A.P., F.A.C.P., F.A.C.G.
1136 W. Sixth St.
Suite 401
Los Angeles, CA 90017

Specialty: Gastroenterology; Heart rate variability (HRV) and esophagogastric pH. GERD (gastroesophageal reflux), IBS (Irritable Bowel Syndrome), Panic Disorder, and PTSD.

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