It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Addison's Disease Message Board


Addison's Disease Board Index


Hey everyone! :yawn: (I'm sorry this is sooooo long)

I have a never ending fatigue, and stiff neck. This all started when I went through a series of stressful event (Got married, bought my first house, totaled my car, got into financial trouble, changed jobs) all within 6 months.

The Fatigue started in Sept of 2005. I started to notice that I was yawning more, and my strength in weights was going down. I worked out 6 days a week. I ate 6-7 meals a day containing only healthy proteins, fats and carbs. I would eat tons of veggies, and drink TONS of water daily. I didn't smoke, drink, or do drugs. I had lost of 90lbs, and was on my way to have a very nice body. Until..... January of this year.

I noticed more and more, when I got off work, that I just wanted to sleep, instead of lift weight. I didn't want to even get off the couch. I thought it was an electrolyte imbalance, at first. This went on for another 6 weeks, until I couldn't workout anymore. I went to the doctor to have some bloodwork ran, because things just didn't seem right. I thought I had Mono, or something.

Well, before getting my results, I took a vacation to sunny Florida. I was there for 5 days, and I enjoyed every bit of it. I didn't stress out, or think about bills. On the last day, I started to notice that I was feeling better. This got better day after day. 3 days after being home, I was 100% energized!!! I could lift weights, my strengh was back.... It was awesome! :blob_fire Until.... 3 days after that. I started feeling run down, and drained again. Of course, I spun into a little depressions, and started eating nothing but junk food for the past 6 months. As you can imagine, I've gained a lot of weight back. When I saw the doctor for my lab results after returning from Florida, they were all normal. No mono, not anemic, liver/thyroid/Cholest.... EVERYTHING WAS PERFECT. My doctor told me I was a text book of health.

I'll list everything I've done so far at the bottom, but the only thing that showed problems was my Saliva test. Here are the results

DHEA-S 3.8 --------- Normal ranges are between 3-10.

This is my Cortisol levels

Morning (3.8) ---- Normal range is 3-10
Noon (0.9) ---- Normal range is 2-4
Evening (0.1) ---- Normal range is 1-2
Night (0.1) ---- Normal range is 0.5-1.5

I'm tired from the minute I wake, until the minute I fall asleep. It worse in the evening. I've tried just about every supplement possible. I'm taking Isocort now, along with Vitamin C, B6, B5, Mag, Multi, DHEA, B12, E. I've been eating a very healthy diet, and trying to exercise daily for 20-30 minutes. I get atleast 8 hours of sleep a night.

I have an endo appt on Jan 22nd. I'm going to have her run as many tests as possible. I'm seeing my PCP this thursday, showing her these results, and asking to be placed on Cortef. She's a DO, so I'm hoping this will happen.

Has anyone seen results this low? Do you recommend Cortef? Isocort isn't doing anything for me, been taking it for 5 weeks now.


Here is what I've tests/been tested for.


-Blood tests : EBV/CMV, standard blood panel, Lyme disease
-EKG and 24H Heart rate monitor
-Pulminary chamber test for lungs
-Accpuncture
-Therapy : 3 different types of SSRI's (Paxil, Effexor, and Prozac)
-Mold tests in home. Normal readings, house in great condition
-Allergy test (skin injections) common and foods 1 and 2
-Sleep study
-Dietary change (Multiple times)
-Quit using aspertame
-Candidia cleanse
-Humaworm (dewormer)
-Saliva Test : 4 x's Coritsol and DHEA-S
I am having many of both of your same problems. My biggest right now is the dropping of blood pressure and the dizziness while coming to a standing postion. What are your doctors doing for this, have you just had to live with it??????? I had another hormone added today called Premarin and I felt awful after one pill. It wore off in several hours, and if it does it again, I will call tomorrow. I am just to the point where I feel like I am bothering the doctor.
I have confirmed addisons, with another realm of endocrinology problems including follicular thyroid disease, hypoglacimia, elevated prolactin which is under control, along with it. My Insulin Tolerance test showed low coritsol due to adreanal glands, and the need for growth hormone which is not even being addressed right now due to my sensitiivty to medication. They have told me no more cortef and no more florinef. I am on 30 of cortef and .1 of florinef. The side effects on the primeron do not look good. Look as if many of them are what I am already experiencing.

I guess I don't know what else to do. I am leaning toward another opinion.:dizzy:
[QUOTE=kmatthew]I am having many of both of your same problems. My biggest right now is the dropping of blood pressure and the dizziness while coming to a standing postion. What are your doctors doing for this, have you just had to live with it??????? I had another hormone added today called Premarin and I felt awful after one pill. It wore off in several hours, and if it does it again, I will call tomorrow. I am just to the point where I feel like I am bothering the doctor.
I have confirmed addisons, with another realm of endocrinology problems including follicular thyroid disease, hypoglacimia, elevated prolactin which is under control, along with it. My Insulin Tolerance test showed low coritsol due to adreanal glands, and the need for growth hormone which is not even being addressed right now due to my sensitiivty to medication. They have told me no more cortef and no more florinef. I am on 30 of cortef and .1 of florinef. The side effects on the primeron do not look good. Look as if many of them are what I am already experiencing.

I guess I don't know what else to do. I am leaning toward another opinion.:dizzy:[/QUOTE]


Well, that's always confused me. I don't get dizzy when standing, never have. My BP has always been in the area of 120/70. I really don't have any of the symptoms of AD, just more of adrenal fatigue. I hope you feel better, and find the right doctor to help you on your path to recovery. It's sad... I would give up sooooo much in my life right now, just to be where I was a year ago.


[QUOTE=Orion]If you do have some kind of adrenal insufficiency you need to find out why and that requires an endo. Most likely the why is going to be pretty serious and you may need more than just some hydrocortisone pills. I would have a complete hormone profile done to see what else may be deficient. [/QUOTE]

First... AWSOME NAME. It represents a lot of things for me. It was going to be my name, but well... you have it first :)

Second.... I'm going to try and see if I can find an endo sooner than the later Jan appt I have. I've waited of almost a year for answers, and I don't feel like waiting another 10 weeks before just getting tested. When you say, most likely some things serious, what do you have in mind?

Also, my only other symptoms besides the fatigue, is a stiff neck. It also came on slow when the fatigue started, and has gotten to where it is now. I tried accupuncture, and messages, heating/ice pad... nothing worked. Anyone had this symptom too?





All times are GMT -7. The time now is 02:54 PM.





2019 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!