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Addison's Disease Message Board


Addison's Disease Board Index


Hi, have been reading some of your posts and you seem quite knowledgeable on the appropriate labs to ask for...or at least to suggest to a dr.

I have been on a rollercoaster of health issues for many years. It started off having antinuclear antibodies that were 1:1280 hence got checked for lupus....this was in New Zealand and I had to fight to get anything checked on socialised health. Anyway they could not diagnose lupus and told me I had fibromyalgia and prescibed antidepressants. Life went on... also have PCOS and needed intervention to get pregnant. Finally on one of my work trips to the US I took myself to the urgent care on a day that I had one of my many anxiety attacks and the labs showed autoimmune thyroiditis...Hashimotos. I thought, finally a diagnosis and life would get back to normal. It did for a couple of years and now all the old symptoms are rearing their ugly heads and I am finding it increasingly difficult to cope with everyday life, 2 toddlers and work. I ache all over, get up and drag myself to work, my eyes have a hard time adjusting to light and feel tight and swollen if that makes sense. I lose my words midsentence, and get lightheaded for brief periods. I have a pain in my side that comes and goes and I have gotten so irritable that I don't even like myself. Apparantly my TSH is in the normal range at 1.38 even if I would like it to be under 1. My weight has gone up 20 pounds over the last 5 months. Probably something to do with the fluid in my hands and feet and face in the morning. I do exercise and until 5 months ago was into doing triathlons.(Not easy at 180 pounds) I still run 12 miles a week and I force myself to do it as it is the only time I feel good...after the exercise. Today however I stood on the treadmill feeling more lethargic than usual and my resting heart rate was 57.

So now you have heard my story.....I just need some input as I would like to go prepared to this new dr who I hear is open minded. I would like him to test for Addisons...... what do you think? Where should I start?

Looking at some old labs, I had a DHEA of 15 (1.2-10.5) back in 2003 and nothing ever came of that..... :dizzy:

Thanks T
Hopefully others reading will pop in with their ideas too. It is helpful to hear from as many people as possible. There are many who have "much more" knowledge than I regarding autoimmune problems.

It seems you have some of the symptoms of Hashimoto's even though you are being treated & your TSH is good.

Info from another site.......
What are the symptoms of Hashimoto's Thyroiditis?
Some patients with Hashimoto's Thyroiditis may have no symptoms. However, the common symptoms are fatigue, depression, sensitivity to cold, weight gain, forgetfulness, muscle weakness, puffy face, dry skin and hair, constipation, muscle cramps, and increased menstrual flow. Some patients have major swelling of the thyroid gland in the front of the neck, called goiter.

Autoimmune problems are difficult as symptoms over lap. You do have a big risk of getting addisons & should be tested as I've mentioned before. It will be up to you to be sure they do it right. Hashimotos can contribute to weight gain as Cushings can.

The pain in your side could be your adrenal. I had flank pain in the early stages, but most doctors tend to ignore it as a symptom of adrenal problems. My endo actually called it flank pain due to the adrenals.

For me, being irritable is a sign of low cortisol. One of my daughter-in-laws can tell when I have over done it & need some hydrocortisone.

Print the ACTH stim procedure & electrolyte tests to show your doc what you want done. Also take all the old labs you have. Your weight gain will be sign against addisons, but make him test you anyway. Have your DHEAS tested again. Has your sugar level been checked?

When is your appointment with the new doctor?
Hi,
thanks so much for that. My appointment is Wednesday, and I hope to get a better response than my last dr who just said you need more antidepressants. I definately need more than that.

I have to be careful about the number of tests ordered as I have to pay myself (only a major medical policy at the moment).

My biggest fear is that they won't find anything to help me. At least I am told this dr will use Armour for the thyroid problem. I have not had my sugars checked recently. I try to maintain a diet low in sugars in particular due to the risk of diabetes. I have salt cravings..... Don't like to read too much into things but when you want answers you tend to search a lot.

I had a serious reaction to VIOXX after a surgery a few years back and ended up in hospital with BP sky high and 15 pounds of fluid retention and a possible gastric bleed so have been told to avoid NSAIDS. Are some of the treatments for these conditions in that family of medications?

Thanks for taking the time to read this. I will look into the cushings but I don't have some of the features of that either but then I guess the blood work will tell all. T
Hi again,
well the drs appt went pretty good. The doctor makes more sense than most I have come across. First he wants to get my thyroid problem under control better and is changing me from thyroxine to Armour and adding in DHEA, pregnenolone and fish oil. He has drawn some labs and we will wait to do the electrolytes and cortisol etc (mainly as I have to pay cash and need to pace these things). Will post again when I have those results through. He is also concerned about the fact that I have not had a period in years....at 36 years I hope menopause is not an issue yet. Feeling particularly low and anxious about where to go from here, but hopefully here is the beginning of feeling better.





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