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Since you were diagnosed with adrenal insufficiency & are only taking 12.5mg, you are ""needlessly"" having symptoms. You should be on at least 20mg, taking 10 a.m., 5 noon & 5 about 5pm. You cannot get by on only 12.5 with your symptoms. It will help you all around to take at least the min dose of 20mg. I also wonder about your endo. You will need to be the driving force in your health care with adrenal problems. The docs have no clue!!!

Are you taking the 12.5mg all at once?

Your salt cravings means you need at least more Hydrocortisone or perhaps Florinef also. You get some of the benefits of Florinef from the Hydrocortisone. What are your sodium & potassium levels?

Has your endo discussed how you should increase when you become ill or have trauma of some kind? The excercise you are attempting to do has no cortisol to cover it. No appetite, vomiting, diarrhea & insomnia are signs of not enough cortisol (Hydrocortisone). Many take 2.5mg just before going to bed to enable them to sleep better. Others take it when they wake in the middle of the night & can't get back to sleep.

Most of us with addisons/adrenal insufficiency lack testosterone, so sexual function is lacking unless it is replaced.

Don't let what you read about steriods mislead you.....we are REPLACING what we no longer make. We cannot exactly replace as a normal body does therefore we need a bit more than what they say a normal body produces. What you read is aimed at those who abuse & take steriods for reasons other than keeping them alive, which is our purpose.

My opinion is you need more Hydrocortisone if there is no hope of your adrenals ever working.
[QUOTE=WandaB]Since you were diagnosed with adrenal insufficiency & are only taking 12.5mg, you are ""needlessly"" having symptoms. You should be on at least 20mg, taking 10 a.m., 5 noon & 5 about 5pm. You cannot get by on only 12.5 with your symptoms. It will help you all around to take at least the min dose of 20mg. I also wonder about your endo. You will need to be the driving force in your health care with adrenal problems. The docs have no clue!!!

Are you taking the 12.5mg all at once?

Your salt cravings means you need at least more Hydrocortisone or perhaps Florinef also. You get some of the benefits of Florinef from the Hydrocortisone. What are your sodium & potassium levels?

Has your endo discussed how you should increase when you become ill or have trauma of some kind? The excercise you are attempting to do has no cortisol to cover it. No appetite, vomiting, diarrhea & insomnia are signs of not enough cortisol (Hydrocortisone). Many take 2.5mg just before going to bed to enable them to sleep better. Others take it when they wake in the middle of the night & can't get back to sleep.

Most of us with addisons/adrenal insufficiency lack testosterone, so sexual function is lacking unless it is replaced.

Don't let what you read about steriods mislead you.....we are REPLACING what we no longer make. We cannot exactly replace as a normal body does therefore we need a bit more than what they say a normal body produces. What you read is aimed at those who abuse & take steriods for reasons other than keeping them alive, which is our purpose.

My opinion is you need more Hydrocortisone if there is no hope of your adrenals ever working.[/QUOTE]


Thanks for the quick reply Wanda I really appreciate it. My endo hasn't really explained anything about it when I get ill or not. He's been getting me better slowly but he isn't much of a talker.

Every time we've taken a test on my electrolytes they have been pretty normal (salt is around low normal, sometimes 1-3 points below). My endo comes in on tuesday so I'm going to call and mention this. I'm not sure addison's is up his alley, but then again I've yet to find a doctor that does specialize in it.

So are you telling me these symptoms are probably unnecessary? Why is it everyone that are on these forums.. it's just impossible to find someone living a normal life or even close to one. I've tried to search and search.. I've yet to find someone with a physically demanding job that has addison's/adrenal insufficiency and they seem to struggle just to get some cardio done or mild weight training despite all these claims of "You can lead a relatively normal life," I see everywhere. I just don't want to feel disabled anymore..

By the way I take 7.5mg in the morning and 5 in the afternoon. I might get desperate and try to up the dose myself to 15 or something and see what happens from there, or even 17.5.. how would my doctor know? And what would be the issue with tampering down if it wasn't necessary? I'll talk to him first though..
Chris,

Good that you were resting on New Years. We had a quiet New Year's eve at home. Much safer to be off the roads out here in the country.

Your frequent urination could be adrenal related. With primary addisons I have to take 1/2 tab of Florinef to help me retain water, keep the salt level up & the potassium where it should be. Many take a whole tablet or more.

I think I remember you have diabetes already (can also cause frequent urination)? When was your last electrolyte check done? Are you being checked often? Are you eating salt?
[QUOTE=WandaB]Chris,

Good that you were resting on New Years. We had a quiet New Year's eve at home. Much safer to be off the roads out here in the country.

Your frequent urination could be adrenal related. With primary addisons I have to take 1/2 tab of Florinef to help me retain water, keep the salt level up & the potassium where it should be. Many take a whole tablet or more.

I think I remember you have diabetes already (can also cause frequent urination)? When was your last electrolyte check done? Are you being checked often? Are you eating salt?[/QUOTE]


Everytime we have had electrolytes done they have been fine, (salt one or two points below but pretty normal everything). I do have diabetes insipidus so that is why I take the desmopressin.. but oddly enough I think the cortef and DI are related.. as when I bumped up my cortef awhile back I went from 6 sprays a day(which is extreme for DI) to 3. As if the cortef helped cure or heal me somewhat... or just having more cortisol helped take care of that, so they are connected I noticed.. just don't know how they relate exactly.

I'm not craving salt anymore, I try to eat healthy but I eat whatever I want, never have to worry about gaining weight.

I hope I can have a quiet new years with my fiance some day. She's always into doing family parties, going to parties, being social all the time for holidays. Oh well.. :) what can ya do





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