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Addison's Disease Message Board


Addison's Disease Board Index


I'm at 17.5mg right now, and my doctor says recent studies show that we make around 15mg when we are healthy and only take 20-25 when sick, and that 25-30mg is too much for anybody on a normal basis.


Symptoms are constant muscle exhaustion and fatigue. Should I consider a new doctor if they are unwilling to try anything higher?
[QUOTE=chrisS81;2951921]I'm at 17.5mg right now, and my doctor says recent studies show that we make around 15mg when we are healthy and only take 20-25 when sick, and that 25-30mg is too much for anybody on a normal basis.

Symptoms are constant muscle exhaustion and fatigue. Should I consider a new doctor if they are unwilling to try anything higher?[/QUOTE]

Keep a detailed diary. Write down when you nap, when you feel fatigue and exhaustion. Write down what events you missed, how you felt during the ones you did attend and how your life is being affected.

After several weeks, take the diary to your doctor and ask him if he would like to lead your life? There is nothing to lose by trying 30 mg/day. It won't kill you in a year but it might just help.

Remember, he is only a consultant. You are in charge, it's your life we are dealing with, not his. He goes golfing after seeing you while you lay down and sleep after your visits. He is not god, and neither he nor anyone knows the right dosage of hydrocortisone. Endocrinology is one of the most underfunded areas of medicine so no proper tests have been done to determine exactly what is going on with adrenal insufficient patients. Most of what he is saying is just guessing.

If he can't agree to be a partner with you; if he insistes he is god, then it's time to move on to a new doctor.
[QUOTE=chrisS81;2951921]I'm at 17.5mg right now, and my doctor says recent studies show that we make around 15mg when we are healthy and only take 20-25 when sick, and that 25-30mg is too much for anybody on a normal basis.


Symptoms are constant muscle exhaustion and fatigue. Should I consider a new doctor if they are unwilling to try anything higher?[/QUOTE]

Hi,

I am a primary addisonian. I had cushing's disease and had to have both of my adrenal glands totally removed (bilateral adrenalectomy) about 3 years ago. My docyotr says the same. I currently take 17.5 mg of cortef a day. But I am also taking florinef .1 mg and .5 every other day. (fluodricortisone) Do you also take this? If not then you would require the higher dose of cortef.

I have some very interesting reading on the subject if you are interested let me know where to send. What is most important is for you to feel good. If not then speak with your dr. If he doesn't satisfy then consider a 2nd opinion. I know it makes a huge difference to have an Endo that specializes in pituitary axis and adrenal disease. Believe it or not all Endos are not the same!





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