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Addison's Disease Message Board


Addison's Disease Board Index


Hi everyone, how are you? I was diagnosed with addison's disease in August/September 2006 along with hypoparathyroidism. I was diagnosed with addisons after having one blood test come back with low cortisol levels, 80/50 blood pressure, extreme weight loss, and dizziness/nauseasness. I have been on 15 mg of cortef in the morning and 10 mg in the afternoon for a total of 25 mg a day. I am also on calcitriol and 2500 mg of a calcium supplement.

Lately I have just felt so terrible. I have been extrememly nauseas (sp?), with a terrible headache, very tired and lethargic, not much of an appetite, and I haven't been sleeping well.

I have a dr. appointment next week, I just don't know if I can wait that long. Part of me wants to get a second opionion to make sure that my diagnosis is correct.

I am wondering if I could be on too much medication or not enough, how do you decide? I also have low sodium and potassium levels, and have had high blood sugar in the past. I have been monitoring m blood sugar and lately its been fine.
Hi 2Jen!

I was diagnosed about the same time as you last year. It has been a challenge for me, but I am finally feeling as if I have a handle on all of this. I have a few questions about your symptoms. Are you perhaps coming down with a cold, or having some increase in stress in your life? When you describe the nausea and headache, it reminds me of how I feel just before something is about to hit me. That is how I know that I need to start increasing my dosage. I actually learned the hard way, after 3 months of off and on UTI's.

Also, you say that your electrolytes are off, sodium and potassium? Has the doctor mentioned Florinef to you? It is another medication which is often times essential to those of us with Addisons, as we tend to loose our sodium due to the lack of Aldosterone production. Try increasing your salt intake and see if that helps. I usually drink a few cups of hot water with chicken bullion cubes dissolved inside when I feel like I am getting sick. Feels sooooo very good, I can't even describe it!

My dosage is 20mg of Cortef in the am and 10mg around 2pm. I find that that timing works best for me.

I do hope you get to feeling better soon!
Blessings to you,
MaryAnn





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