It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Addison's Disease Message Board


Addison's Disease Board Index


Hi all,

I truly enjoy reading what everyone writes, sounds odd I know, but I am glad you are all here. We have all gong through a lot and have similar stories to tell. I am glad that you are all here to help me too. I am going to try diet and exercise again to lose weight. Anyone ever try Hip Hop Abs? Sounds like fun to me so I am going to start there. I like to dance but am really bad at it. I will only be able to do what my arthritis and Addisons let me do. When it hurts too much I have to stop. I really want to lose some weight.

I have never heard of Evista, what is it for? Boy am I happy to hear that you have been on steroids for that long and it has not affected your bones too much. I was a bit worried about my future and how long before it would affect them. My dad was on Prednisone for a few years due to emphazema and he broke his ribs just rolling over in bed. I am on Cortef and florinef but still sterioids to worry about. I also take levothyroxine for thyroid, Clarinex for allergies, alleve for arthristis, Ranitidine to help my stomach with all the other med I take, calcium, fish oil and Dhea as supplements and use Dovenex for my psoriasis. I tell you it is almost impossible to remember to take all those pills at the right time of day! I do it most of the time without missing one but every now and then I forget..............wonder if it is the addisons? ;)

Oleqwilter you are on a lot of Cortef, I am not a Dr but from what I have learned and been told that is too much for your body and will cause more damage in the future. I guess it could be based on weight and I don't know how much you weigh but I have always been told by every Dr I have seen that 20mg a day is plenty. I am on 15. Have you been on that hight a dosage since 1972? If so then you are lucky to have no other side effects. Please do some research on that and talk to your Dr. I would hate for you to be having side effects because the dosage is too high. That would only make things worse.

Kareng45 you have to find a medicine that doesn't make you sick. You will die without it. What meds have you been on? Cortef or Prednisone? Florinef? Florinef is very important if you have low BP and that can make you sick. It might not be the meds that are causing you to be so sick but maybe you are not on the right combination? Karen just keep writing and people will respond, sometimes it takes a while but they do. This is a great place to be when you have Addisons. Sooo much helpful info.

Hope you are all doing well today also. :)
Acutally I mis spoke I take 25 mg of cortef in the am and 15 at 4 pm. I took cortisone acetate for the first 24 years. Then because of production problems I took prednisone and several other steriods. I went to a new endo because of brain fog, muscle and joint pain. He switched me to Cortef and put me on thyroid meds too. Immediately the symptoms went away. But I don't know if it was the cortef or the synthroid. Evista is a medicine for bone loss. I am still way in the normal range for a 60 yr. old woman, but I intend to keep it that way and so have been taking the Evista. We played with the cortef using blood tests and symptom relief to adjust the meds to the current level. I believe I started on 20/10.

Has anyone had trouble switching to generic Cortef. I did within the last couple months and I am having dizziness, fatigue, muscle pain. I am wondering if it is because of the generic meds.

Thanks in advance Oleqwilter
Karen, So sorry to hear about all the trouble you are having. It sounds like your doctor is on the right track sending you to Mayo. They can do some amazing things there. I was diagnosed last spring after having all the symptoms for 2 years. It started with passing out in the shower. Sometimes I wonder about the diagnosis-- I have never shown to be low on cortisol, although I am low on aldosterone. I had symptoms of having too much prednisone once I started taking it, so I am on a low dose but take a normal dose of Fluorinef. Did anybody else out there start with just being low on aldosterone?
It is great to find a place where other people know about this crazy thing called Addison's.
Hey all

I hope today has been a good day for all of you, I finially took a shower, ha. the frist one since Thursday monrning, I always take one every day, I even wanted to go to church, but somehow I just didn't have the energy if you all can hear where I'm coming from. I am on 33 med's a day, my Dr's say that I have a number of illness that could keep me from waking up in the morning. I try to fight as much as I can some days my body just shut's down and I have to sleep for two or three days to let everything build back up, or so that my say about it. Yes they put me on Fludrocortisone 0.1mg and on Prednisone 5mg. I've had to stop them, now my blood pressure is 93 over 58 before I got my pacemaker my heart rate was 28 to 35 for the month I was out of the hospiltal. My Dr. told me none of my glands were working, I also am a Dibetic and have fibro and many more problems. Hope you all are havine a good day.:angel:
Hey all

I hope today has been a good day for all of you, I finially took a shower, ha. the frist one since Thursday monrning, I always take one every day, I even wanted to go to church, but somehow I just didn't have the energy if you all can hear where I'm coming from. I am on 33 med's a day, my Dr's say that I have a number of illness that could keep me from waking up in the morning. I try to fight as much as I can some days my body just shut's down and I have to sleep for two or three days to let everything build back up, or so that my say about it. Yes they put me on Fludrocortisone 0.1mg and on Prednisone 5mg. I've had to stop them, now my blood pressure is 93 over 58 before I got my pacemaker my heart rate was 28 to 35 for the month I was out of the hospiltal. My Dr. told me none of my glands were working, I also am a Dibetic and have fibro and many more problems. Hope you all are havine a good day.:angel:





All times are GMT -7. The time now is 12:51 PM.





© 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!