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Addison's Disease Message Board


Addison's Disease Board Index


Nick, have you looked into taking DHEA? Did they test your DHEA levels when you had your cortisol and Testosterone levels checked, usually it is checked the same time. I also have been told that I am pre-diabetic, I have insulin resistance. All these things were checked at the same time, I have low cortisol, DHEA, progesterone, estrogen. My endo has put me on Cortef, pregnenolone and DHEA. I was afraid to take the DHEA at first because I am a woman, and didn't want to end up with a hairy face, but you being a man it is a perfectly safe thing for you to take and it will raise your testosterone levels. There are also things that you can do on your own to help with your dizziness and fatigue, follow a diabetic diet, you don't have to follow it to the tee, but alot of it is helpful. the Mountain Dew must go!! You will end up with diabetes if you continue to drowned your body in this toxic substance, the sugar and caffeine constantly being put into your body is causing your adrenals to work overtime and wearing them down. Also, white flour, sugar, noodles, white rice, it is best to avoid them completely, they are empty carbs. I know it's almost impossible to completely take these things out of your diet, but try to avoid them as much as possible. Eat mostly protein for breakfast, that means NO DOUGHNUTS, no pun intended!! LOL, have a breakfast burrito made with a corn tortilla, or McDonalds has a breakfast platter that is eggs and sausage, you guys get a discount or something right? Just don't eat that hashbrown thing, UHG!! I'm trying to think of things that you can eat while on patrol other than the basic hamburgers and fries. I know how hard it is for police officers to be able to have a good healthy meal. I used to own a graphic design co. with 2 officers, and my brother in-law is a sherrif's deputy. You guys work so hard and spend your lunches and dinners in the car, plus the rotating shifts make things hard too. But all this fast food will just make you worse. If you are put on meds but you don't adjust your diet it will not help you. there are alot of books out there that have info about what should be eaten and what to avoid, one real good book is "adrenal fatigue the 21st century stress syndrome" by James Wilson. Also take probiotics, you possibly have candida overgrowth in you intestinal track from all the Mountain Dew. You can buy this OTC. And when you get up in the morning drink some sea salt water, this will help replenish the sodium that your body loses with the low cortisol. Have you had your thyroid checked? Hope this was of some help. And good luck with everything. Sarah
Hi guys, thank you very much. I appreciate the effort you all have put in on my behalf. No tickets from me! ;) any way I am going to request to go on reserve, and work part time, Im too sick, and has become unsafe for me. Well my thyroid was tested, and came back normal. also, when I went to the ER my Sodium Chloride was low. My doctor called me today and said [B]congradulations![/B] you dont have addisons disease, it came back normal. " now all we need to do is focus on the tesosterone she says." I dont see how this can be, considering my Corisol was low on two test. Also, my DHCA sulfate is low as well. I have been on a Diabetic diet, but it does little to relieve my symptoms. I am going to see her tomorrow, but I figure were going to hit a wall on agreeing further testing. I have read alot about doctors opinions on the ACTH stim test. it will show a reaction from the Adrenals, but that is it. They are either on or off. The test fails to show how well the glands are funtioning. I have heard alot of positive things about saliva testing due to the fact it is 24 hours. I dont know...I found a Doctor in Seattle who specializes in Adrenal fatigue, and has alot of credentauls. I'm thinking of scraping some money together and making the trip. Insurance wont cover him though, and it will be very expensive.

P.S. One morning I woke up and could barley move. I felt like I had a lump in my throat and had a hard time swallowing. I felt like I couldn't breath that well. I sat up and was very dizzy, foggy and my body felt like I wieghed a 1000 pounds! I just sat there trying to gain my sensus, but had a very difficult time. My wife looked at me and became concerned. She stated my face was very pale. also, My wife has stated my eyes look "glossy" when im not feeling well, and my pupils look big. She took me to the ER.....and of course they sent me home again not knowing the cause. ANY ONE HAVE ANYTHING LIKE THIS???

I get alot of "it's all in your head." The only reason I have found as much as I have so far on my low harmones levels, is due to the fact I refuse to accept that as an answser. I believe you KNOW when somethings not right with your body, and I have been super aggressive with doctors, to the point of near arguements in their office. I have actually had doctors refuse to order test saying "your wasting your time." If I had simply taken one doctors word for it, I would have never found out about my low cortisol, DHEA, and Testosterone. Just a thought for anyone experiencing anything like this. DONT take one doctors word for it.
Well I saw my endo, and she said my base Cortisol was at 11. This to me seems to be in the low normal range. Then after the ACTH test it went to 21. She stated that means your Adrenals are fine. The problem I have with that is the last two cortisol blood draws were at 2.3 and 2.9. they were both at a LAB. quick in and out. the ACTH was done at a hospital, and to say the least I was unconfortable and stressed to have to go to out patient and get an IV in my arm, which would explain my elevated Cortisol level. She said I only need to worry about my low testosterone of 199. I said my DHEA is low, if I take DHEA, wont that bring the Testosterone up? she stated no, I cant make DHEA without Testosterone and wants me to take the shot every two weeks. I'm not sure thats a smart move. Then I said what about my blood sugar issue? its been hitting 195 off just half a cup of soda! She sated there was no corilation between Low testosterone and glucose leves. I've read plenty that states other wise. Also Iv'e read plenty that low Cortisol and low DHEA has a direct effect on blood glucose. Im so frustrated and confused! please help any one!???
hi every one im really rather scare d right now after just eating a huge bowl of cheese cake yikes lol i have been having low cortisone results for a while and it was 235 the range being 250 to 850 uk range anyway i had one done at noon or maybe it was 130 and it wa s 100 can you beleive that so im having some salive tests done and i didnt fancy the um dhea is or something like that they wante d to inject stuff inot me and someone said it was weird anyway im getign so tired i have low iron and heavy periods i have been loosing weight and craving sugar just so tired foggy and achey so any info would be appreciated asnd this is the sort of food i eat i have cut up fruit to much on as i like to ahve thsi for when i get peckish i have a pack of crisps at mid morn and babana i have salad and a small tea liek a bit of cheese red meat and sald and then i munch on fruit and bits of figs and cocoanut when hungry i have high blood sugar i will post on the saliva tests when i get them thanks to anyone who can help love from katxxxxxxxxxxxxxxxxxxxxxxx and i ahve quiche and does thsi mena aviod whole meal bread or pasta a s thats the type i eat i avoid sugar and coffee so whayt can we eat have you more that i can listen too i hear the white of eggs and i have tuna aswell most days i haer that liqourice is good and siberian gensenge and a good hair vit or multi vit and cod liver oil and vit c have you all have hair loss mine is bad as i have hypothyroidism and im on nearly 75 thyroxine and am on a very low dose of methodone but trying hard to reduce but feel like im withdrawing all the tiem thyroxien strips it out feels like and i have tiredness from the iron meds what can i do could this be from all theese factors but i need help i get so tire d thanksxxxxxxxxxxxxx:wave: ;) :wave:
DIAL/Nick, how are you doing? It's been a month or so. Hope you're still able to hang in there.

Regarding the salt recommendations, let me vote for that too. I still have trouble drinking salt water, so I add it to my food (which I never did for 30 years) and take salt tablets with meals. Along the lines of what earlier posters state, the carbs often call me, and when salt calls me as well, I reach for salty corn chips, etc... which take me into that carb cycle. Salting food and taking the salt tablets helps stem those cravings. I am also taking 0.2mg Florinef and that's taken my AM BP way up to a 108/78 average (still too low for a 6'1" 220# male).

My MD (who is an internist and is very helpful but amateur on the adrenals) ordered hair mineral analysis, and I'll have to say it's right on with testing the minerals pertinent to the adrenals, analyzing levels and ratios and making recommendations. Right now she has me on 40mg cortef (25/10/5), 120mg pregnenolone, 0.2mg florinef and a 2 sprays of sublingual DHEA (we started out lower but slowly and carefully increased as indicated by my response or lack thereof). With all that I wear a MedicAlert tag for Adrenal Insufficiency.

My blood sugar does the same as what you're describing, and it is tied to adrenal function. You can hope along with me that once your adrenals are treated and stable your own insulin will work better. Until then, do as everyone else already posted - eliminate those simple carbs and sugars. Have you tried stevia as a sweetener? Some brands leave a bitter aftertaste, others are quite usable.

Thanks Nexis for that tip on how to find a knowledgable endo. I still feel I need the next step in my 15-year decline and search for a doctor who can figure out root cause and stabilize treatment. Of course, one of the top docs listed when I searched was the CEO of a Dallas Endo group and he's the one that wouldn't listen to me, spoke down to me and told me that "nobody is salt deficient," that it's all in my head that I feel better taking salt tabs. But this gives me a lead to find a Dr that might have a clue.

Ralph
PAI/Hashimoto's/Hypoglycemia/SAD/OSA/CD
Hey, I'm still having a hard time. The lab results show 3 harmones low. Cortisol, which has been showing anywhere from 2-4 and DHEA sulfate, and testosterone. I havn't been on any meds. I am hesitent to take tesosterone shots due to the fact I dont want to shut down my natural production. I'm trying to figure out a natural way to bring it up. I went to the Mayo clynic, they were worthless. The Endo there looked at my charts listened to me, and said "I dont believe your promblem is Endo related, I think you may have Crohns disease, That would explain the irregular bowl behavior and weight loss. I said if it's not Endo related, how do you explain my blood sugar issues. He stated he wasn't sure, maybe I was turning diabetic. Even though I my testosterone was at 199, im only 24 by the way, I was fine cause I can maintane an erection. This is idiotic logic due to the fact not all men experience sexual disfuntion due to low testosterone. I warned him about my low cortisol, and explained how I have had 2 cortisol stim test done prior to seeing him, which came out normal. My problem with the cortisol stim test is it only tells you wether or not your glands are on, or off. it does nothing to show how efficiently they are functioning, and balancing out your body's needs. The doctor I saw stated he doesn't believe in adrenal fatigue, and says it's a myth, since I past the test before I was fine and had no issues with cortisol. He ordered a blood draw before I left. The next day they called me frantically stating we need you to come in and take another cortisol stim test. your cortisol was only at 4! I said "thats what I was trying to tell you! these doctors have a real God complex and dont want to listen to logic! I said what will another stim test do??? It will show normal like the others. I believe Einstein once said "Madness is doing the same over again expecting a different result." I guess by definition, all these doctors are crazy. So....I'm still sick, my Career as a Police Officer is on hold, I had to apply for state benifets and insurance cause im broke and cant make money, My home is getting foreclosed on, Doctors cant figure out how to treat me, and im exhausted and sick every day now. I'm trying to stay focused and vigilant, but it is hard. It has turned into a up hill battle. I was tested for Lyms disease, but was negative. I then found out the test are unreliable and very hard to diagnose. I'm gonna have to look into a West blot test. I appreciate all your help.
-Dial
Hey, I saw the Naturalpath today. He said my stool showed alot of Candida yeast overgrowth, and bacteria. A urine analysis showed I lacked all major nutrients, my body was full of free radicals, and my adrenals are depleted. He gave me an IV full of Vitamins, and all kinds of supplements to start. one of which is DHEA 25MG. Is this too much? I'm a little aprehensive about taking it. He aslo said "not to scare you, but along with your weight loss, there are some underlining red flags that need to be addressed and I strongly recommend we test you for the presence of cancer" Oh well, if so, I'll ride till the wheels fall off. I'm sure I'm fine though. I am real curious about DHEA, and if men need more or what. There seems to be a lot of controversery over DHEA. So far, this is the latest and greatest.
Thanks for caring
-Dial
P.S. I know your thinking..how could a cop have such poor spelling and grammer. Spell check baby, cant seem to use it on here though.
Sure, My Symptoms ara as follows;
[LIST]
Shortness of breath
tremors, shakyness
extreme fatigue, exhuastion
light headness, dizzyness
heart palpitations
feelings of anxiety
hyper glycemia with unusual sugar levels after eating, many time very high, in the 200 range. on some ocassion it goes low, and i have an hypoglycemia episode, this has been rare though
rapid weight loss, lost 25 pounds in a manner of 3 months, 168 to 143
lab test show tesosterone of 199, cortisol aroun 2.3,2.9,4, DHEA was low around 260 I believe
feelings of blacking out, or close to blacking out
[/LIST]
hope this helps
-Dial
I did have my thyroid checked, I dont know the lab levels, doctor only said it was normal. Also supposedly my petuitary gland is normal as well. this is one reason the doctors are confused. They kept probing and asking me if I had done any Illegal steriods in the past. I only laughed. No I havnt. Also Any one know about DHEA?? my naturalpath wants me to take 25 MG every morning, I read alot of controversary on the safety of DHEA and how much to take.
-Nick
Hey Cloud,
to be honest, I'm still really sick. I am not any better than before. My insurance was pulled and have to pay out of pocket. B/c I have to pay out of pocket, its taking me forever to get treatment and test done. One thing the Naturalpath wants me to take is DHEA. For some reason I am scared to take it, and havn't been able to convince my self to do it. The whole warning about racing heart, dizzyness, and heart palpitations freaks me out! I have had these things happen already as my regular symptoms, wich terrified me and caused me to go to the ER, I really dont want to take a pill and chance reliving that truama. This is my battle with this crap. I feel exhausted all the time, and just plane sick. I cant even do anything a little physical demanding without feeling like falling over. I have become very sensitive to Cold and hot weather. I tried to go out side, (I live in AZ) and I could only take the heat for about 15 min before I felt like I was going to black out. I figure low cortisol may be to blame for this, not sure though. I feel worse than ever and just dont know what to do. my wallet is dry. The Mayo Clynic wants $6,000 from me for basically doing nothing. They first said "it's in your head" then they said "you have Crohns Disease" then they said "we dont know" they even told me my problems were not Endo related, HA! my sugars hit 200+ my Cortisol is in the 2's and my Testosterone was at 199 hmmmm not Endo related at all
Good morning DIAL,
I don't know how far you can get with this, or how fast, without med insurance. Ouch!
1. You've got to get the candida under control. Diet will get you only so far... you'll probably need some anti-fungal(s) too. But as mentioned by others, cut out not only the sugars but also simple carbs, which are converted quickly to sugar. Stick to eggs, peanut butter, simple meats, nuts, etc. Careful with juices too. Eat tart fruits (strawberries, blueberries, granny smith apples), not sweet.
2. If you haven't already, learn more about the hormone cascade that starts with cholesterol, pregnenolone, cortisol, DHEA and many others. What the doctors need to figure out is what you're low on and why... where the process is breaking down and where supplementation makes sense. Is your cholesterol high? normal? low? If it's low (mine was 119 total at one point), your body might not have the raw materials to produce hormones.
3. Get your thyroid results from that doctor... the numbers. Have them mail you a copy with the lab results. "Normal" can mean almost anything. Then read up on how the reference ranges are determined. Keep in mind that adrenals and thyroid are related... not always, but many forum members have issues with both.
4. The cortisol levels you mentioned do seem low (keep in mind... I'm not a Dr, nor are most or all in this group). That alone could really kick you. But I remember when my MD looked at my cortisol levels (saliva test, in my case), she looked at me and said I was in the bottom 5 percentile... that anybody she's seen that low can't get out of bed or get to work. Pushing myself through a 45-workweek, I suddenly went from feeling guilty, lazy and wondering if it's "all in my head" to feeling pretty heroic for pulling off what I was doing. If your naturopath is your main medical consultant at this time, see what kind of supplementation you should do. DHEA makes sense to me, and also something to support your adrenal function would seem in order. Perhaps also pregnenolone, which you can get at a health food store. But be careful here, research it yourself and take expert advice, not just my post!
5. Salt. If you're blacking out and feeling real weak, AND if your BP is low, add extra salt. You may already be craving it. IF you're not craving it, or if your BP is high, do not do this. For me it took florinef (generic = fludrocortisone) to finally lick the blackouts.
6. Do everything you can to get quality sleep. If you're not sleeping well, your body is not able to repair itself.
7. Hot baths! Especially if you're prone to picking up colds or infections, I feel a regular, daily artificial fever is good for a body. Fill the tub at 105F, and you'll end up with about a 102F "fever" for about an hour to kill the bugs. btw - what is your temp, and is it steady or variable? That can help you pinpoint adrenal or thyroid issues. Track with a "metabolic temperature graph." One school of thought says that a low body temp is indicative of thyroid issues, whereas a body temp that bounces up and down is indicative of adrenal issues.
8. Exercise, but gingerly. I've worked back up to a 20 minute walk, but no more yet. I'm 52 and should still be able to run/jog. Even hand-washing my car is too strenuous for me, reducing me to a quivering blob of protoplasm (or so it feels).
9. Make sure you get some sunlight. I get Seasonal Affective Disorder down here in Texas of all places, because when I'm feeling that way, I tend to stay indoors.
10. "Hakuna Matata." De-stress. Do whatever you can to calm the body, reduce the noise, the pounding rhythms, etc.. If you're type A like me, that one's real difficult.
Thanks for the reply. My main symptoms as of now are feeling extremley weak. tired all the time. I sleep and sleep some more. I get shaky at times, and get very dizzy. shortness of breath often happens with the dizzynes. any physical activity wipes me out. I have lost 30 pounds in 3 months, and have only gained 5 pounds of it back. I was in the top physically in my Police Academy class, now I cant even play with the dog! I all around just feel very very ill. I have had the following test.
* Ct of the brain = Negative
* CT of abdomen = Negative
* Colonoscopy, endoscopy = Negative
* several thyroid checks = Normal
* several ACTH test = Normal
* heart echo = discovered minor Mitral valve prolapse, doctor said no big deal.
*stress test
*CT of the heart = Normal
* blood check for Lymes, and Valley fever, although I later found out these test are unreliable.
* lab work which resulted in discovery of low Cortisol, Testosterone, and DHEA
*Glucose Tolerance test = hit 245, but A1C and AM insulin levels show normal, and me being non diabetic.

Endo Doctor wanted me to take Tesosterone shots, I didnt, due to trying to find a better natural way to boost Testosterone. I dont want to shut my natural production down and be shot dependent the rest of my life.

Natural path wants to test me for the presence of Cancer.
other than this I dont know what else to say. I am lost. I dont believe this is due to a physcological disorder like some docs have pushed.
l





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