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Addison's Disease Message Board


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Hi guys, thank you very much. I appreciate the effort you all have put in on my behalf. No tickets from me! ;) any way I am going to request to go on reserve, and work part time, Im too sick, and has become unsafe for me. Well my thyroid was tested, and came back normal. also, when I went to the ER my Sodium Chloride was low. My doctor called me today and said [B]congradulations![/B] you dont have addisons disease, it came back normal. " now all we need to do is focus on the tesosterone she says." I dont see how this can be, considering my Corisol was low on two test. Also, my DHCA sulfate is low as well. I have been on a Diabetic diet, but it does little to relieve my symptoms. I am going to see her tomorrow, but I figure were going to hit a wall on agreeing further testing. I have read alot about doctors opinions on the ACTH stim test. it will show a reaction from the Adrenals, but that is it. They are either on or off. The test fails to show how well the glands are funtioning. I have heard alot of positive things about saliva testing due to the fact it is 24 hours. I dont know...I found a Doctor in Seattle who specializes in Adrenal fatigue, and has alot of credentauls. I'm thinking of scraping some money together and making the trip. Insurance wont cover him though, and it will be very expensive.

P.S. One morning I woke up and could barley move. I felt like I had a lump in my throat and had a hard time swallowing. I felt like I couldn't breath that well. I sat up and was very dizzy, foggy and my body felt like I wieghed a 1000 pounds! I just sat there trying to gain my sensus, but had a very difficult time. My wife looked at me and became concerned. She stated my face was very pale. also, My wife has stated my eyes look "glossy" when im not feeling well, and my pupils look big. She took me to the ER.....and of course they sent me home again not knowing the cause. ANY ONE HAVE ANYTHING LIKE THIS???

I get alot of "it's all in your head." The only reason I have found as much as I have so far on my low harmones levels, is due to the fact I refuse to accept that as an answser. I believe you KNOW when somethings not right with your body, and I have been super aggressive with doctors, to the point of near arguements in their office. I have actually had doctors refuse to order test saying "your wasting your time." If I had simply taken one doctors word for it, I would have never found out about my low cortisol, DHEA, and Testosterone. Just a thought for anyone experiencing anything like this. DONT take one doctors word for it.
I did have my thyroid checked, I dont know the lab levels, doctor only said it was normal. Also supposedly my petuitary gland is normal as well. this is one reason the doctors are confused. They kept probing and asking me if I had done any Illegal steriods in the past. I only laughed. No I havnt. Also Any one know about DHEA?? my naturalpath wants me to take 25 MG every morning, I read alot of controversary on the safety of DHEA and how much to take.
-Nick
Good morning DIAL,
I don't know how far you can get with this, or how fast, without med insurance. Ouch!
1. You've got to get the candida under control. Diet will get you only so far... you'll probably need some anti-fungal(s) too. But as mentioned by others, cut out not only the sugars but also simple carbs, which are converted quickly to sugar. Stick to eggs, peanut butter, simple meats, nuts, etc. Careful with juices too. Eat tart fruits (strawberries, blueberries, granny smith apples), not sweet.
2. If you haven't already, learn more about the hormone cascade that starts with cholesterol, pregnenolone, cortisol, DHEA and many others. What the doctors need to figure out is what you're low on and why... where the process is breaking down and where supplementation makes sense. Is your cholesterol high? normal? low? If it's low (mine was 119 total at one point), your body might not have the raw materials to produce hormones.
3. Get your thyroid results from that doctor... the numbers. Have them mail you a copy with the lab results. "Normal" can mean almost anything. Then read up on how the reference ranges are determined. Keep in mind that adrenals and thyroid are related... not always, but many forum members have issues with both.
4. The cortisol levels you mentioned do seem low (keep in mind... I'm not a Dr, nor are most or all in this group). That alone could really kick you. But I remember when my MD looked at my cortisol levels (saliva test, in my case), she looked at me and said I was in the bottom 5 percentile... that anybody she's seen that low can't get out of bed or get to work. Pushing myself through a 45-workweek, I suddenly went from feeling guilty, lazy and wondering if it's "all in my head" to feeling pretty heroic for pulling off what I was doing. If your naturopath is your main medical consultant at this time, see what kind of supplementation you should do. DHEA makes sense to me, and also something to support your adrenal function would seem in order. Perhaps also pregnenolone, which you can get at a health food store. But be careful here, research it yourself and take expert advice, not just my post!
5. Salt. If you're blacking out and feeling real weak, AND if your BP is low, add extra salt. You may already be craving it. IF you're not craving it, or if your BP is high, do not do this. For me it took florinef (generic = fludrocortisone) to finally lick the blackouts.
6. Do everything you can to get quality sleep. If you're not sleeping well, your body is not able to repair itself.
7. Hot baths! Especially if you're prone to picking up colds or infections, I feel a regular, daily artificial fever is good for a body. Fill the tub at 105F, and you'll end up with about a 102F "fever" for about an hour to kill the bugs. btw - what is your temp, and is it steady or variable? That can help you pinpoint adrenal or thyroid issues. Track with a "metabolic temperature graph." One school of thought says that a low body temp is indicative of thyroid issues, whereas a body temp that bounces up and down is indicative of adrenal issues.
8. Exercise, but gingerly. I've worked back up to a 20 minute walk, but no more yet. I'm 52 and should still be able to run/jog. Even hand-washing my car is too strenuous for me, reducing me to a quivering blob of protoplasm (or so it feels).
9. Make sure you get some sunlight. I get Seasonal Affective Disorder down here in Texas of all places, because when I'm feeling that way, I tend to stay indoors.
10. "Hakuna Matata." De-stress. Do whatever you can to calm the body, reduce the noise, the pounding rhythms, etc.. If you're type A like me, that one's real difficult.
Thanks for the reply. My main symptoms as of now are feeling extremley weak. tired all the time. I sleep and sleep some more. I get shaky at times, and get very dizzy. shortness of breath often happens with the dizzynes. any physical activity wipes me out. I have lost 30 pounds in 3 months, and have only gained 5 pounds of it back. I was in the top physically in my Police Academy class, now I cant even play with the dog! I all around just feel very very ill. I have had the following test.
* Ct of the brain = Negative
* CT of abdomen = Negative
* Colonoscopy, endoscopy = Negative
* several thyroid checks = Normal
* several ACTH test = Normal
* heart echo = discovered minor Mitral valve prolapse, doctor said no big deal.
*stress test
*CT of the heart = Normal
* blood check for Lymes, and Valley fever, although I later found out these test are unreliable.
* lab work which resulted in discovery of low Cortisol, Testosterone, and DHEA
*Glucose Tolerance test = hit 245, but A1C and AM insulin levels show normal, and me being non diabetic.

Endo Doctor wanted me to take Tesosterone shots, I didnt, due to trying to find a better natural way to boost Testosterone. I dont want to shut my natural production down and be shot dependent the rest of my life.

Natural path wants to test me for the presence of Cancer.
other than this I dont know what else to say. I am lost. I dont believe this is due to a physcological disorder like some docs have pushed.
l





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