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Addison's Disease Message Board


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Sure, My Symptoms ara as follows;
[LIST]
Shortness of breath
tremors, shakyness
extreme fatigue, exhuastion
light headness, dizzyness
heart palpitations
feelings of anxiety
hyper glycemia with unusual sugar levels after eating, many time very high, in the 200 range. on some ocassion it goes low, and i have an hypoglycemia episode, this has been rare though
rapid weight loss, lost 25 pounds in a manner of 3 months, 168 to 143
lab test show tesosterone of 199, cortisol aroun 2.3,2.9,4, DHEA was low around 260 I believe
feelings of blacking out, or close to blacking out
[/LIST]
hope this helps
-Dial
Hey Cloud,
to be honest, I'm still really sick. I am not any better than before. My insurance was pulled and have to pay out of pocket. B/c I have to pay out of pocket, its taking me forever to get treatment and test done. One thing the Naturalpath wants me to take is DHEA. For some reason I am scared to take it, and havn't been able to convince my self to do it. The whole warning about racing heart, dizzyness, and heart palpitations freaks me out! I have had these things happen already as my regular symptoms, wich terrified me and caused me to go to the ER, I really dont want to take a pill and chance reliving that truama. This is my battle with this crap. I feel exhausted all the time, and just plane sick. I cant even do anything a little physical demanding without feeling like falling over. I have become very sensitive to Cold and hot weather. I tried to go out side, (I live in AZ) and I could only take the heat for about 15 min before I felt like I was going to black out. I figure low cortisol may be to blame for this, not sure though. I feel worse than ever and just dont know what to do. my wallet is dry. The Mayo Clynic wants $6,000 from me for basically doing nothing. They first said "it's in your head" then they said "you have Crohns Disease" then they said "we dont know" they even told me my problems were not Endo related, HA! my sugars hit 200+ my Cortisol is in the 2's and my Testosterone was at 199 hmmmm not Endo related at all
Hi there!
I have had back pain in the flank/mid back regions for years! I always thought it was muscular/skeletal...I could release some tension if I had someone LIFT me by giving a bear hug (by keeping my arms down and having someone strong wrap their arms around my upper arm/shoulder area in a big bear hug and actually lift me off the ground giving me a few shakes)...then I would hear several pops and feel some relief but it was always short lived...an hour or day. I invested in an inversion type piece of equipment so that I could relieve the pressure by hanging upside down. It really doesn't seem to help this area of my back...beneficial for any lower back discomfort that I may be having but not the mid back region. Common sense tells me to see a doctor but I hate going and feeling like I am being blown off. So many times I have seen doctors for different conditions and I feel they do the minimal testing (to cover their behinds:D) and then they give you meds to treat the symptoms and send you on your way. I know they are busy but I want to get to the bottom of the problems not just cover it up. It takes a lot to get me to go to the doctor so when I do go I want to be taken seriously. I have had negative experiences in the past so I have been dragging my feet with this particular problem. I've also noticed flare-ups whenever I carry something heavy like lifting my nephew :jester:etc. I thought my bed may also be a problem as it isn't firm but I am beginning to think I have something more serious going on. :confused:

I was reading some of the posts regarding kidney and adrenal or pituitary problems and found them very interesting. Similar symptoms so I think I will get it checked out. I have a wide variety of symptoms that seem to be getting progressively worse. The other important point is that these symptoms bother my siblings as well, so maybe familial. My biggest complaints are (1)back pain that changes in character...sometimes dull and achy other time warm and throbbing and on occassion a little tingly.(2) Extreme exhaustion and tiredness causing an inability to function fully. I sleep and sleep and sleep and still feel completely wiped out! I feel like Rip Van Winkle... Other symptoms include achyness, tremors/shakiness, anxiety, heart palpitations and pounding, severe sweaty palms and feet, foggy thinking and dizzy spells. I am feeling it may be hormonal or adrenal fatigue...but have had a history of uti's, proteinuria and at one time kidney stones so I will have that followed up as well.

My concern is that I have been taking medications that have helped with a few of my symptoms but in turn has now caused other problems like high blood pressure and (excacerbated the sympathetic nervous system symptoms that I have had since puberty)...it is hard to know what is really going on? I recently had a full cardiac workup because of my family history...Father died at 58, Brother had heart attack at 42 and other family members had strokes, hypertension and cholesterol issues (large sized HDL). As mentioned earlier, the medication I am taking caused my blood pressure to sky rocket to 200/106...led to headaches and other cardiac symptoms...Now on blood pressure meds. My cardiologist was very proactive which I found refreshing....but with my family history he had reason to be.

Now, when I go to see an endocrinologist etc., I am afraid they are going to poo poo my issues or chock it up to a common reply I have seen in these posts when they are dumb founded...psychiatric problem or fibromyalgia. Others have posted "how unhelpful their endos have been"! What some of the doctors said to these patients is unconscionable...I want someone who will search and research to find some answers...[COLOR="Red"]Does any body know of a good endocrinologist in Southern California?...I am willing to travel a bit, so that I don't have to explain my history and physical over and over to several different doctors that aren't focused on helping to solve the mystery but instead get agitated because they cannot quickly figure out what's wrong and aren't willing to dig a little or ask their colleagues for their opinions[/COLOR]

I appreciate any helpful information you may have including the name of a good endocrinologist and nephrologist !! Thanks a million and blessings to you!





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