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Addison's Disease Message Board


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You know, I've dealt with this ignorance before. My fiance of all people thought I needed to try harder to stay awake. Like it was just me being sleepy and giving into laziness when I'd take a nap or need to sit down more. It wasn't until I had a crisis in her presence and went ot the hospital that she realized this was no joke.

I still get it sometimes from family or others who don't have any clue what it feels like when your eyes are so wind sensitive you have to squint because you are so tired and your muscles feel weak as a kitten and sore as if you went through an ironman workout the day before. I'm not balanced yet, and it's a struggle just to get up and do things many days.

It's just ignorance.. unless you have cancer or aids(only two things the ignorant take seriously it seems), there are going to be people that just don't understand. Hard not to get frustrated with the situation, with them, with yourself.. just gotta keep trying your best.
Acutally I think you must have a pretty good friend who is worried enough about you to bother writing and trying to make a difference. Your other friends are just thinking it anyway. I mean if even doctors have a hard time believing adrenal problems, the friends and family have a lot more disbelief. Heck, I didn't even believe it for years for myself, so don't be hard on your friend. Even after I was diagnosed, doctors still did not know how to deal with adrenal insufficiency. I went to 8 endos and of those only 2 shouldn't have been fired. Thank god you have someone who cares even if their analysis is flawed.

I would write back and very politely thank them for being there for you. And then tell them they could be right, but you have to pursue all other medical possibilities as well and you know they will support you til the end.
[QUOTE=orion;3042072]Acutally I think you must have a pretty good friend who is worried enough about you to bother writing and trying to make a difference. Your other friends are just thinking it anyway. I mean if even doctors have a hard time believing adrenal problems, the friends and family have a lot more disbelief. Heck, I didn't even believe it for years for myself, so don't be hard on your friend. Even after I was diagnosed, doctors still did not know how to deal with adrenal insufficiency. I went to 8 endos and of those only 2 shouldn't have been fired. Thank god you have someone who cares even if their analysis is flawed.

I would write back and very politely thank them for being there for you. And then tell them they could be right, but you have to pursue all other medical possibilities as well and you know they will support you til the end.[/QUOTE]

Thank you for putting a different twist on this and helping me to see that if she didn't care, she wouldn't waste her breath. It just hurts though especially when i feel that i'm my worst critic and i'm doing the best i can.....it's like a kick in the pants. The last thing i needed right now was more stress and this really jolted me. But my faith in God is getting me through it and what doesn't kill me will make me stronger.

As for dreemilyn, chris, Diana and 2jen.......THANKS SO MUCH for the good words and hugs. That's why I like this board so much. In a world of missunderstandings and lack of information, we can come here and find a listening ear and compassion and help in time of need. I feel better knowing that.

As for my friend, we had it out today over the phone.....in a good way I guess and I tried as best as I could to explain my point of view. I think she means well, but sometimes it feels like i'm Job from the Bible and i'm getting lambasted from friends when all i need is a listening ear and no judgment.

My sister has schizophrenia and if nothing else all this has helped me to understand a bit of what she must go through on a daily basis dealing with people who don't understand and are making her feel worse as a result.

Thanks again for your support!





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