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Addison's Disease Message Board

Addison's Disease Board Index


Addison's board has been recommended to me by Midwest1. Since my RAI in 1999 my main issue appears to be that no matter what dose or type of Thyroid medicine I cannot reach a dose that makes me well without severe symptoms. I found a doctor that did the basal, metabolic testing and after a saliva test (depressed 8am,11am,-5pm,11 pm normal)(DHEA was within normal reference zone) found my cortisol was low. He started me on Armour (Thyrolar was not available) and when I first took the Isocort (4-3-1) within 3 days I felt good. After that it was all down hill. Even though I reached 90mg(1.5 grains) of Armour I had severe headaches, fatigue, worse body aches, difficulty swallowing, etc. When I went up to 105mg(1.75 grains) I felt STONED all day. The doctor changed my Isocort to 5-4-1. Still sick, still STONED. He lowered the dose to 2-1-1. I went back to 1.5 and still sick. At this point I had been on the Isocort for approximately 8 weeks. At one point I stopped the Isocort concerned that maybe I wasn't low. I went back up to 105mg(1.75 grains) and this time had migraines. I took another saliva test and was again low (8am,11am,5pm depressed - 11pm normal)(DHEA low reserves). The second test was after stopping Isocort for a week. After the new results the doctor suggested we start out with 2-1-1. Became sick right away. At his suggestion I tried 1-1 had severe headache all day. The last time I only took the small dose for a few days. Is there an adjustment period when taking Isocort? or do I have a problem with Isocort brand?? or do I not need it? If I do not need it why do my numbers get worse? -DHEA reading and Cortisol Saliva test??

At this time I am on Thyrolar and Cytomel. In the morning I take T3 - 9mcg, T4 -37.5mcg plus Cytomel T3-10mcg. In the afternoon I take Thyrolar T3 -12.5mcg, T4- 25mcg. The one consistant thing throughout these years is that I always feel better in the evening. Even if it is for a few minutes. Why??? Please help!!! I can no longer function to work. Appreciate all thoughts and suggestions.

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