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Addison's Disease Message Board


Addison's Disease Board Index


Rumpled said in a previous post "since most labs do not perform the test accurately (chilled lavendar toped tube, promptly spun, frozen immediately) and ACTH degrades within minutes at room temperature thus making your results lower than they really are. So if your tub was tossed in a bin, your ACTH was probably much higher. Always get copies of your tests before you leave the office and next time you get your ACTH done, pester to spin and freeze immediately, do it at 8am, and be fasting."

My son (13 yrs old...labs in previous post) did not fast, and I can't say that I have confidence that the tube was the right color or handled correctly.
I'm wondering if that would have made his cortisol lab result lower also than what it actually was (it is under a little from the normal range.) The 24 hr urine was also somewhat low, and I'm not sure how that was handled, although they did tell us to refrigerate, so hopefully they did also.
Since he did not fast, would that make the cortisol lower?

We've decided to see a pediatric endo at the Seattle Children's Hospital or possible one that visits Boise (where we live) on a monthly basis. Maybe we should get these tests redone? Also, the endo we are seeing thinks that something has changed with the ACTH stim test (an ingredient has been replaced?) and didn't want to do that test yet. According to this PA, they had a challenge trying to administer this test recently. Does anyone have any info on this?

Thanks!





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