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Addison's Disease Message Board

Addison's Disease Board Index

Sorry I missed this. My pituitary endos test DHEA sulfate. I am on DHEA as my adrenals were removed.
I had cushing's disease and my ACTH was normal while my cortisol was frequently normal or elevated - I was cyclical pituitary in nature.
I know of others with Cushing's and they will have elevated ACTH with normal cortisol - but that can also be the case with Addison's - the feedback loop is messed up so you really need to find a doctor who is going to test frequently if you suspect high cortisol as you may be cyclical (and go high to low) or an ACTH stimulation test if Addison's is suspected. For instance, now that my adrenals have been removed, my ACTH has risen (last test 1801). So high ACTH can mean both.

I agree - do doc shop if you are not satisfied - no sense is being sick.

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