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Addison's Disease Message Board

Addison's Disease Board Index


The thyroid board is really active. This one is more silent. Many on the thyroid board have done the adrenal walk as well. You could post your questions there. I am new to this and had the ACTH.. which came back as high and the cortisol tests which were normal. I am not sure what is optimal for cortisol testing and thus am looking into it. I hadn't heard of the DHEA test.. but my IM told me to take DHEA, DHA, and EPA. So it is worth getting her to test me when I go back in to discuss my high ACTH.

I hope you get answers. I wouldn't say my MDs treated me like a child. They seemed to wave their hands and act like it was in my head. Well the migraines are in my head.. my other issues are in my neck.;) I am keeping an eye on your post. Feel free to jump in on mine as well. I have had to swap MDs 5 times to get those that will work with me. It is a rough ride. You are not alone. You should be able to talk your MD into prescribing the tests.. especially if you tell them you are going to go over their heads. I hope your MD sees the light. If not, you might want to consider MD shopping.

Sorry I missed this. My pituitary endos test DHEA sulfate. I am on DHEA as my adrenals were removed.
I had cushing's disease and my ACTH was normal while my cortisol was frequently normal or elevated - I was cyclical pituitary in nature.
I know of others with Cushing's and they will have elevated ACTH with normal cortisol - but that can also be the case with Addison's - the feedback loop is messed up so you really need to find a doctor who is going to test frequently if you suspect high cortisol as you may be cyclical (and go high to low) or an ACTH stimulation test if Addison's is suspected. For instance, now that my adrenals have been removed, my ACTH has risen (last test 1801). So high ACTH can mean both.

I agree - do doc shop if you are not satisfied - no sense is being sick.
Can't you talk him into a trial of Cortef or Adreset given the border line low cortisol test? Just to see if it helps? I hate the you are normal. Well normal in a statistical Gausian bell curve about a statistal average.. does not mean optimal for you. Have you looked to the Armour physician locator database for a thyroid/endocrine system savvy MD near you. If the mD treats you like a child... as you say. Find a new one. I would have given... and have given MDs the boot for less. I also make sure the other MDs that are good hear about them and as many patients as possible too. What city in IL do you live in.. I will dig up Armour approved MDs in your area and list them by name and city for you. Now I am mad for you. I am glad you ACTH is normal.. you don't want that sucker high.


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