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Addison's Disease Message Board

Addison's Disease Board Index

It's been a long long time since I've seen cortisol that low. Your ACTH is among the lowest i get to see. High indication of secondary adrenal insufficiency. Could you have had a head injury? Even a mild head bump can mess up the pituitary. Pituitary problems do not get better and the use of cortisol in secondaries is for life. I'm secondary adrenal and secondary hypothyroid. With numbers that low you have no business going anywhere until your cortisol is properly addressed. Your numbers indicate high risk of adrenal crisis which you don't need to happen on vacation. If you can't do stuff at home, your husband should want you to stay home. Maybe have someone go in your place. Those are the precautions you need to take at this time.

You need the acth stim test (12 hour fast). See my post about how to interpret this test. You do need to get proper thyroid testing which where there is low cortisol, thyroid is low too (TSH, Free T3, free T4, TPO and Tga thyroid antibodies). Also get prolactin, igf-1, DHEA-S, aldosterone and renin (fast salt and salty foods for 24 hours, test first week of your cycle), fasting insulin and glucose, LH, FSH and all sex hormones with SHBG.

If you have low potassium that is what happens with 99% of secondary AI. Where there is low potassium usually renin is low. Low renin is what 99% of secondaries have. If your sodium is 140 or less, I expect you to have salt wasting symptoms (hard to handle heat, excess sweating, salt craving), sometimes low thyroid can mask these symptoms. I also have a post about all this from a few posts ago.

Explain to your husband that hormones are the bodies gasoline. Thyroid, cortisol and sex hormones are very big for that. Your tank is near empty. Show this to your husband, he needs to understand.

Hang in there.

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