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Addison's Disease Message Board


Addison's Disease Board Index


Thank you all for replying. Well firstly i have just been to see the endo today for the results of the cortisol result- suprise it was normal according to him (result 20.5 after over an hour of stabbing me with needles) therefore there is no need to try a stim tests again, or do atch or any other hormones.
With regard to being unable to cannulate me they were using peadiatric cannulas and had my hands and feet warmed in hot water but they soon go cold again.
They said that a stim test would be done as a last resort to rule out addisons (symptoms weakness, faintness, hypoglycaemia, cant exercise otherwise i collapse, cold, nauseaus especially in the morning) and now they have got that one random cortisol they are saying that that is as usefull as the stim test to rule it out. Anyway endo has said to keep doing normal things and to try and put more weight on (i am on 3000 calories a day anyway and since december have lost 7lb)
With regard to my frequent urination thirst etc, the endo did a prolonged water dep test i finally managed to just about concentrate my urine after 20hours fasting, therefore when i drink i am constantly going to the loo. Endo therefore ruled out diabetes insipidus from that and said to reduce my fluid intake but since ive done that i feel dreadful (dry mouth and tongue is cracking/sore, lightheaded, and of course thirsty)
I just dont know where or what to do I guess all i can do is wait! What do you think? thanks
Thanks for replying rumpled. Well after moaning to the endo about my not improving symptoms he huffed and said i could see the other endo next door to whichi did. Anyway he seems to be going along the same lines as the other one- basically saying that the water dep test was normal as i concentrated after 20 hours and to reduce my fluid intake (labs for the test showed a high plasma osmolarity, and low urine osmolarity after fasting but i wasnt given the injection) and also says that the random cortisol of 20.5 after extreem stress is equivelant to having the stim test thus i produced an adequate responce plus atch is nothing to do with my symptoms. So im at a loss - like they keep saying the tests are 'normal' so i start doubting myself by thinking maybe it is in my head, but then i try and walk into town not far and feel like im going to collapse and that makes me see relity. The endos dont see me when im at my worst which also makes it hard. It seems like most have trouble being diagnosed.
Thanks for replying, I have done some research and found that low cortisol can cause urine to concentrate hense taking 20 hours to concentrate, thus could still be diabetes insipidus masked my low cortisol. Thing is would asking gp for low dose vasopressin to see if that fixed DI symptoms make it harder to pinpoint ? cortisol?
I am concerned about asking for them to repeat random cortisol as they have been 'normal' apartform the last one which i have doubs about ist accuracy (if it doubled then it would have been alot lower than my others-at 281, or within range eg 500's maybe and not have doubled either way we dont know). And endo has said that we physically cant do the stim test as they cant cannulate or able to get the bloods off me-dehydration. What would you do as he is saying that this last cortisol constitutes a stim test? I just dont want to push them too hard as its taken 4 years to get this far and i have tried to sort of direct him but that just puts his back up and holds things up. Thanks.





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