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Addison's Disease Message Board


Addison's Disease Board Index


My son was diagnosed with Addison's. His endo is still waiting on tests to see why he is not producing cortisol.I've had to take him to the ER room for fluids twice because he couldn't keep down the cortef. He is very nauseous all the time and throws up a lot and has migrains. The headaches and nausea were getting better when the endo upped his cortef dosage then she said the next day to cut it back down to half and the nausea started so today I'm giving the double dose and calling her on Monday.

She started him out on cortef 7.5 mg 3X a day and 5 mg at bedtime and that dosage wasn't stopping the nausea or headaches. When a person is first dignosed with Addiso's shouldn't what is the normal starting dose? His primary care doctor thought the endo didn't have him on enough cortef to start with. He's lost 14 pounds in 2 weeks and has been in bed for 2 months.

He is having a pituatary scan done next week and she is waiting on more test results. The endo is 2 hours and away and we only have 1 pediatric endo in our town. The hospital I took him too 3 days ago wouldn't admit him even though I asked them to because I was afraid he couldn't keep the cortef down when we got home.

He is not on florinef now. His electroytes are normal and his blood pressure has been very high on cortef. It was very low and he was first diagnosed with vasovagal syncope by a cardiologist 4 weeks ago. In the past when he's taken prednisone his BP always goes way high also.

I appreciate any suggestions or what I can do to stop the nausea. Is that an indication that he needs more cortef?
Pam
I have great news! He woke up feeling great this morning. I think getting extra cortef yesterday helped.

We have a very good local doctor who knows about Addison's, although he is not an endo. He was highly recommended to us. We've been seeing him almost everyday for the past 4 -5 days for the nausea and throwing up. He said my son wasn't on enough cortef. His BP has been running 135/98 since starting cortef. His GP said not to worry about that for now. His endo said cortef shouldn't raise his BP but he GP said it could. He has taken predisone in the past for migraines and it had the same effect on his BP then but also caused a lot of anxiety so he couldn't take it very well.

His endo was out of the office last Thurs and Fri. I talked to her on Wed and she said to double the cortef. That seemed to help the nausea so she said go back down to 27mg and then he started throwing up again.

Is there an injectable form of cortef? His endo didn't say anything about emergency cortif.

My son is 14 now. He has been sick since he was only 6 years old. He has had Addison's symtpoms and low blood pressure with daily migraines, nausea and fatigue. He has been home schooled because of his health. I've requested the Addison's testing before and his doctor at the time, did 24 hour urine cortisol test. That came back normal when he was 9 so I didn't question Addison's anymore after that.

Then my mother had a positive ACTH just 4 months ago. She was very sick and hospitalized weighing only 73 pounds. She has been going to doctors for 2years trying to find out what was wrong and getting weaker. She hasn't been able to get out of bed much for 2 years. She went into a crisis 2 years ago when my father passed away and I thought she wasn't going to make it. She also had extreme nausea and vomiting. She is not much better now because she refused to take the full dose cortef, but her nausea is better on the very low dose of cortef. She takes a very small dose of cortef because she said it hurts her stomach even though they have her on Nexium for that. She has IBS and past ulcers.

Can Addison's be heritary? I read that it rarely is in only 2% of the cases. I read people with that form do not produce adrenal antibodies. Do you know of test they do to see if it is inherited or not. My mother tested neg for antibodies but we don't have all the results on my son yet.





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