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Addison's Disease Message Board

Addison's Disease Board Index

Ok, here is my symptom list:

[*]Difficulty handling daily or excessive stress
[*]General feeling of weakness and being tired
[*]Taking longer then previously to get over illness or heal
[*]Rarely feel rested in the morning after 7 hours sleep, (getting out of bed in the morning is frequently a Hurculean task)
[*]Panic attacks / hyperventilation / heart palpitations / feeling like someone is standing on my chest during times of great sudden stress
[*]Inability to exercize or perform strenuous physical activity without it making me much weaker for a day or more (used to run Cross Country / Track in High School, but something suddenly changed where I couldn't breathe during my normal running pace and it's never been same since)
[*]Symptoms frequenty get worse around 3:00p-4:00p
[*]Frequent problems with mind wandering / excessive daydreaming / feeling drowsy if reading, driving, or being mentally inactive for over 20 minutes
[*]Problems with focus, short-term memory, concentration, etc, (even though my IQ has been clocked in the low 150's)
[*]Frequent bouts of depression and hopelessness
[*]Recent labido issues and low-to-no motivation or drive
[*]Don't enjoy things or activities I used to enjoy
[*]Impared social skills and awareness, emotional distress in most social activities, little / no social life or friends
[*]Mild psychotic episodes (usually goes along with the depression / hopelessness where I can't find a way out and it all comes caving in, but there are no physical outbursts and I still have a pretty good grip on reality)
[*]Work performance has gone down the drain. Basically, I'm in "Zombie" mode most of the time where my body is there, but I'm next to useless
[*]Occasional headaches, or light-headedness / dizziness (sometimes when still just sitting down)
[*]Unable to finish college because of a learning disability probably related to all of the above

Basically, I'm dead in the mornings. My head feels like it's full of Jell-o, and my body usually overrides my need to get out of bed. We need to get my daughter off to school in the morning, but my wife has both Lyme Disease and (under treated) Hypothyroidism, so it's pretty much up to me to get the family going in the mornings. (If I don't wake up early to get my wife her pain meds, she's not able to get out of bed).

There are occasionally days where I'm clear headed and semi able to function, but I spend those days mainly wondering at what time of the day it will all come back. We have yet to find any rhyme or reason for the temporary remission or the up/downs, (and it doesn't fit Bi-Polar I, II, or Rapid-Cycling).

I have no stamina, drive, career sense, and during times of stress or challenge I "lose it" and have panic attacks instead of "stepping up". Motivation at work/home is basically gone, because it doesn't matter how much I may happen to succeed it won't change my health, so why use more of my dwindling energy stores trying?

It's been like this as long as I can remember, but recently with both my Daughter and Son starting to show signs of the same social / emotional / mental markers I did when I was a kid. I now have to deal with the stress of knowing they'll probably end up the same way when they hit adulthood, on top of dealing with my health and my wife's disability, (and the strain our relationship takes from all the stress).

No smoking / no alcohol / no drugs / no coffee or caffinated drinks / no credit-card debt / no console video games / no unhealthy obsessions, and we try to eat healthy home cooked meals with very few fast-food trips, (and even then we only order small portions - no combos or Happy Meals). I am probably too inactive, but anytime I try to exercise I just end up almost fainting from anything over a gentle pace, and I feel weak for the next day or two, (and my GP still insists the answer is that I need to exercise more). :(

I have an abnormal ACTH Stim test (more then doubled but still under 20), flattened Cortisol daily rhythm, and elevated ACTH vs. Cortisol, as well as Low T, Low FSH, Low LH, and Thyroid results that look like something is blocking my T3 from being absorbed, (but still in the normal range, and not HypoT or HyperT). I also have abnormal Pregnenolone, DHEA-s, and IGF-1, so my Endo is confused and convinced that my labs are flukes and probably thinks it's all in my head. (I frequently see a Shrink w/ the wife, and he's yet to tell me I'm crazy, so I doubt it's all cognative based especially since my kids, Father, and some siblings show similar mental traits).

So, does that sound like something that would need some leave to seek treatment and keep it all from crashing down?
How was you DHEA(s), Cortisol, and Aldosterone while you were "on the way out"?

DHEA(s) - 461 (110-370) - 135% of range
Aldosterone - 7.4 (4.0-31.0) - 13% of range
Costisol - 8.8 (4.0-22) - 25% of range
ACTH - 69 (7-50) - 144% of range

I would think that if everything is going ka-put, that my DHEA(s) wouldn't be so high, (or is that diagnostic of another problem)?

I would have to look back in my notes because I was only 11 at the time but I do know that my cortisol level was the lower range of normal.

They did countless tests on me because they could not understand what was wrong with me when the tests came back within the normal range.

DHEA is not a big thing over here, I know you can buy it in the States and New Zealand where I have a friend who has the same condition as me. It is not available to buy here however you can get it on the Internet.

I know that your levels of DHEA should decrease with age and so they did do some trials on giving it to people with Addisons Disease to see if it was of any benefit. I don't take it because I felt no different being on it.

It's worth going on and typing in something like +endocrine +increased levels of DHEA, I did alot of research into my condition on the web as it is very rare and not mentioned in many medical books.
@Rumpled -

Luckily, I think I have a milder case b/c I'm not "tossing my cookies" with any regularity.

I'm able to shop, drive, sit at my desk at work, type, etc. Problem seems mainly to be that it takes tremendous effort to get going and stay going. Once I get to my desk, I'm pretty much fatigued and Zombie-like all day long. I can function, but just barely, and my memory, concentration, mood, drive, ability to handle stress, and quality of life are pretty much tanked.

As far as my IGF-1, it was actually High @ 266 (106-255) - (107% of range). That's the confusing part. If it was Pit you'd think there would be more hormones (ACTH, TSH, IGF-1) low instead of normal or high, and if it was totally Adrenals you'd think my DHEA-S would be low instead of high.

Maybe it's something like a mild case of CAH or rare like that... (and I'm not saying that because I want to be "rare" or "special", just because my lab patterns don't seem to fit any of the more common diagnosis).

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