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Addison's Disease Message Board


Addison's Disease Board Index


Hi Pam, I'm so sorry to hear about your son! He's been through so much (you too)! How is his Occiptal Neuralgia? My own son is struggling with it (he's 18) and going for his 3rd nerve block tomorrow..... it's been awful.
I had a few tilt table experiences. Each time they were done, there was a different outcome. The first one was negative for POTS (Postural Orthostatic Tachycardia Syndrome). The second one was positive. One day my pressure dropped 50 points in the cardiologist office...I thought her eyes were going to bug out of her head! Then the next tilt was negative! It's crazy!! What was his baseline bp before standing him up? how high did his bp go up when they stood him up? Beta blockers were recommended for treatment.....they didn't help me ...So I was given the diagnosis of POTS with vasovagel synscope" this was 1.5 years before I was diagnosed with adrenal insufficiency. They were refusing to even look at the adrenals at that point. ugh! I don't understand why his doctors would not perform a tilt test even if your son has Addison's. Hang in there Pam! I will keep you all in my prayers. Chris





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