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Addison's Disease Message Board

Addison's Disease Board Index

Hi Mary Jo,
Well, I got the results of my stim test back yesterday and everything came back low. I actually didn't get the exact numbers, I just found out that they were low and that my doctor referred me to the endo.
It has been a really tough few days. I ended up with some kind of bug, I think, that just knocked me out. It started with the staph infection that was diagnosed on Thanksgiving. Then Friday I came down with some kind of respiratory virus. Then on Sunday I started with some other wierd thing. I actually am wondering if it has something to do with my adrenals, or something else in my endocrine system. It's happened 4 times now. First of all, it seems that I almost always get sick right before I start my period. I get a cold or some other bug. Well, the last 4-6 months the same thing has happened, but it's been worse. It's about a week before I start my period, and I am sick, when I start to feel really bad. I get extremly tired, so tired I can sleep 20 hours out of a day. I also get hot/cold sweats and I swell up like a balloon from head to toe. I basically can only lie in bed, feeling like I am cold, but yet sweating, and sleep for a couple of days. I also feel very lightheaded and my head is in a fog, so bad I can't drive. After a couple of days, the swelling starts to subside. It's like my kidneys start working as I am in the bathroom all the time. After that, I start to feel better and the other symptoms start to go away. Then.....I start my period. I get really bad cramps, nausea, etc.
Anyway, I started with one of these episodes on Sunday and today I was feeling so bad I went to the doctor. She did every test imaginable and couldn't really find anything, except a high wbc.
Do you ever experience anything like this? Because I felt so bad and my doctor couldn't really find anything, it makes me feel like it is endocrine. And she did every "normal" test. She did a strep test, a flu test, urine test, pulse ox, mono, blood work, chest x-ray, etc. For me to feel as bad as I did today, it just seems odd that everything came back normal.
I know what you mean about having addison's and it affecting your immune system. It just seems like I have had one thing after another, and it is only getting worse.
Since my stim test cortisol levels were low.....does that automatically mean I have addison's? Or can you have the low cortisol without having addison's? Do you know? You seem pretty educated on all this medical stuff.
I know how you feel about doctors not believing you sometimes and how frustrating that can be. You are right, we pay them so we deserve good treatment. I have seen sooooo many doctors over the years and have had my fair share of...."maybe you should see a psychologist, or...Here take this antidepressant, etc..." I have chronic pancreatitis as a result of years of surgeries and problems with my liver and my bile duct as a result of having my gall bladder out which all started right after I had my daughter. My daughter's birth was very hard. She was almost 10 lbs and it took me 4 hours of pushing and forceps for her to finally come out. I had a lot of problems after her birth from the episiotomy and from the trama of the forceps. So, after I had my gall bladder out and I was still having problems, I started the doctor search. One of my main goals was that I wanted to get myself to where I could have another child, which I told the doctors. So, I went to this one doctor and he barely listened to me, didn't even examine me, and said "I think you are just very nervous about having another child because you had such a difficult delivery. I think all you need is to go see a therapist." I couldn't believe my ears! I was so mad!
I am sure we both could go on with stories like these. It sure is a blessing when you do find that doctor that actually listens and cares.

Hope you are feeling well and aren't to cold out there with those horses!

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