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Addison's Disease Message Board


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I am waiting to see an endocrinologist because an adrenal stress profle ( saliva) came back with the above results.

My early morning cortisol is half of the lowest figure considred normal and then it goes very low for rest of day but my DHEA is just above normal.

The lab report says I am in the exhaustive stage of adrenal collapse.

My GP says it could be mild addisons hence the referral to endo.

Can anyone tell me what tests I am likely to face from endo?? I am in UK so no one may be able to tell me as you all seem to be from USA but would still be interested to know what tests you have over there.

I have some of the symptoms of addisons like dizziness and tendency to faint on standing plus chronic pain very low blood sugar that I find hard to control and am very overweight partly due to blood sugar problem as I have to eat so often but I do not have pigmentation ( maybe in genital region but not too dissimilar to what normal people have there).

I know I do not have pituatary tumour as I had brain mri a few months ago and it would have shown up - I also had full spinal mri's which again would have shown up any adrenal tumours so GP says looking at auto immune if its addisons.

Can you have adrenal exhaustion and it not be addisons?????

I will have to wait quite a few weeks for my endo appt and want as much info as I can before I go.
Hello

Thought I would reply because I am from England too and have a lot of experiences with doctors here! It sounds like you have a very good GP. Most doctors we have seen (including endocrinologists) do not value saliva tests. Some forward thinking doctors do however, I hope your endo is one of them. One of the tests for Addison's is a synacthen test, so hopefully your endo will do that. Regarding tanning/pigmentation, you could still have secondary adrenal insufficiency as this presents with low ACTH. The high ACTH in Addison's causes the pigmentation, so if you had a low ACTH then this would not cause a tan. It is good that you have had a pituitary tumour excluded, have you had any other hormone tests so far? Also, have you been prescribed steroids (tablets/inahlers) in the past year or so, as some people can develop adrenal problems after this?

Good luck, I hope you get an appointment soon.
Joodles
thanks Joodles for replying.

I have never had any steriod hormones in my life so that cannot be cause.
I have had no other tests at all other than the saliva test that I paid for myself after being advised to have it by a medical herbalist. It was a surprise to get the results!

My GP says the endo is a very nice lady and I know my GP spoke to her personally the day I saw my GP and I received my appt by letter the following day, the appt is on 18 th Feb which is quick for nhs endo as you will appreciate. I assume she will do any further tests as necessary:dizzy:





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