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Addison's Disease Message Board


Addison's Disease Board Index


Hi there- this posting is long overdue as I'm having a VERY difficult time managing my meds, moreover, my life. I was diagnosed w/ Addison's 3 years ago, and probably lived w/ extreme adrenal insuff. for a few years before that. I'm new to this forum and am hoping that someone out there might have some suggestions for how to get through the night without waking up in sort of adrenal crisis mode (EVERY night). I wake up every night/very early a.m and feel horrible; extreme nausea, lightheaded, fast heartbeat, and in need of cortisone, salt & food. It's making me extremely depressed because then when I do need to wake up, I am soooo wiped out. It is a battle to get to work by noon & I often am dragging myself through the day. I am 38, 5'4 and only weigh 96 lbs. This is another battle - if anyone has any ideas how to put on weight....I'd love to hear. I am very hypoglycemic and so need to eat every few hours, so my low weight certainly is NOT from lack of calories.
Currently I'm taking 25 mg of hydrocortisone divided into 3 dosed throughout the day, and then I take 1.5-2mg prednisone (equivalent to 6mg hydrocortisone) around 9p.m.... this usually carries me through until about 5a.m. I don't fall asleep until around 11:30 so getting up at 5 is not enough sleep for me, nonetheless, I wake up and have to deal w/ feeling totally screwed up... then I go back to sleep. Anyway, I don't want to babble too much, but if anyone has any ideas, suggestions, similar frustrations, etc. PLEASE drop a line.... whatever I am doing clearly is not working. Does anyone take time-released hydrocortisone or prednisone? This seems like it might be the answer. FYI - my last cortisol test showed cortisol less than 1. Obviously I'm pretty fragile.... sometimes it seems so unreal.

Thanks in advance for any advice.....
I may not be much help, but I can relate to a certain extent to what you're going thru. I'm not on cortisone at present, but taking adrenal glandulars. Prior to being on this supplement i would go to bed and sleep for a couple of hours then be up for a couple or so and then go back to sleep and I'd go on night after night with broken sleep. I kept a chart at the time and my sleep would average 3 to 6 hours per night and never in a row...always broken. Eating some protein would often help me get back to sleep, but not always.

Since I've been on adrenal glandular i sleep so much better, but on those nights when i have trouble sleeping i take a half-gravol which helps me. Another thing which often helps is eating a little protein like peanut butter or cheese on a cracker and that helps as well.

Having said all that, I'm wondering if, based on your post, you need more cortisol. A cortisol of 1 sounds low to me.





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