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Addison's Disease Message Board

Addison's Disease Board Index

Can anyone help me?? I have just ben diagnosed with addisons this week and was told i have complete adreanal failure, My doctor tells me, he thinks i have more going on than just addisons disease aswell..but my endrocologist cant see me for at least another 8 weeks as he is to busy. I have been told they want me in hospital asap, but due to the lack of beds and staff, this is not possible at the moment and i will have to wait till 28th of august before anyone can see me.

Has anyone had to wait this long,before they saw there endro consultant?? As i have been sent home from hospital with just my medication and no information about the disease at all. My GP tells me he does'nt know a thing about addisons and he also said he does'nt even know when he should send me into hospital. My life is in his hands, and he gives me no confidence in the way he is treating me, so i am very scared... Has anyone else had these sort of problems too????
I am in the process of tring to find a new GP...

I have sevear tremors and shakes in both my arms, hands and legs, I have constant lower back, neck, leg, shoulder pain and i am finding it hard to walk unadided at the moment, i am also extremly tierd all the time and pass out and collapse every day,my BP when i was in hospital last week was ranging between 80/24 and 90/50 i am so scared, as no one is telling me anythink apart from i must stay on the steroid medication or it can kill me.(And i hate this medication, all i seem to do is cry all day, i must admitt this is getting better each day tho) i have also been told i have a small ovarian cyst about 3cm but an elevated ca125 level which could indicate a tumer, I am now awaiting another scan for this In the last 6 months i have had pheumonia in the left lung an infection in the right lung and i also had a P.E bloodclot in the lung,endriometriosis and IBS. The doctors have told me i have not got any nurological problems but they cant explaine why i am having troulble walking and why i have extremely bad tremors and shakes all over, but mainly in my legs, and arms, i also have have numb hands, they shake too , but some days are better than others, I don't no why...
Also i have been suffering with indigestion, nausia, ice cream headaches just in my forehead, feeling lightheaded,confused most of the day and my memory is awfull.
The doctorsand consultants just tell me i will get better in time, and that i need to see an endriocologist, as they dont know what is wrong with me and that the addisons disease is completely over there heads medication for addisons is 20mg of hydrocortisone and 100 microgrames of fludoritisone a day.
PLEASE CAN ANYONE HELP, as i am so scared and feel so alone . I am a 38 year old lady tring to bring up to young boys on my own.and i am finding each day so hard..I hope someone can help as i feel so alone. the hardest thing for me was every one was saying it was all in my head and i needed to see a shrink. but now i have been diagnosed they tell me i dont need to see one anyone.
At least now i know i am not going mad :)

The doctors have just told me that they believe i may be suffering with lymes disease aswell, this makes so much sense as i have had the bulls eye rash in october, my condition has got so much worse since they put me on the steriods.
Does anyone know if it is true that steriods, can make the lymes disease twice as bad? this scares the hell out of me as i cannot come of the steroids because of the addisons disease.
does anyone know how hard it is to get rid of the lymes disease once it has started to hit the nervouse system?? is it curable?? how long will it take to get better or will i get better completly, seeing how i am in tyhe later stages of the disease??

I also just done the canadian lymes test, and was so shocked as i scored:
53 out of the 76 symptoms, now i am worried.
PLEASE HELP ................................................................
went to my doctor yesterday asking to be retested for lyme again and he said no because i have been trreated for lyme under the nhs guidlines which is 21 days of ab... I told him this was not enough if i have long term lyme. so i asked if i could be tested privetly...

His reply came.....

Well its not worth having thr test done privetly because testing say it does come back that you have lyme or co-infections who will treat you for it as the NHS wont and if you cant afford to be treated privetly cos the money would have to be funded by you

Also if the test wa done privete no NHS hospital will use the results...

Where does this leave me to die a painful death im scared frustrated feel like ending the pain now cant go on living every day being ill, these last five months everything is going wrong with me and know one seems to want to help, yes the doctors are treating the new conditions that keep arrising but if i could stop the lyme from killing and attacking my emmune system (thats if i have lyme but im 99 % sure i do as i had the bulls eye rash back in 08 before i fell ill) then maybe i would stand a chance but to just leave me like this i dont stand a chance of having a normal life or seeing my boys grow up


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