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Addison's Disease Message Board


Addison's Disease Board Index


Re: Why oh why???
Mar 27, 2010
Forgive me if I offended those who have this syndrome. Well I guess my point should have been that these are all syndromes (collections of certain symptoms)...the "cause" of why you get CFS or addison's or FM is what I am referring to. PATHOGNENS The pathogen or toxin that caused you Addison's Disease to me, is the REAL disease and the Addison's, CFS, Adreanl Fatigue or what ever is just the end result.

So how would you know if you had Addison's Disease and not another condition? Is it just the cortisol blood test? I had the All-Day saliva test and my morning cortisol was MUCH lower than normal...what would it look like on Addison's in the mornign and at night? At night mine was higher than normal; I have lots of trouble sleeping and rarely wake up well-rested. I DO NOT crave salty foods much though.

Anyway, back to the MAYO CLINIC...I obvioulsy am not allowed to post links here, so I will post a quote and the name of the author from MAYO's site that dismissed "Adrenal Fatigue" which is a less severe form of, but same type of condition as Addison's

"It's frustrating to have persistent symptoms your doctor can't readily explain. But accepting a medically unrecognized diagnosis from an unqualified practitioner could be worse. Unproven remedies for so-called "adrenal fatigue" may leave you feeling sicker, while the real cause such as depression or fibromyalgia continues to take its toll."

-- Mayo Clinic Endocrinologist
Todd B. Nippoldt, M.D.
Re: Why oh why???
Mar 27, 2010
I understand what you mean, the cause for these things could possibly be the same. I think the problem is they don't really know for sure what causes autoimmune diseases and other mystery syndromes. There are genetic links but also there are triggers such as defficiencies, viruses, etc.

My cortisol levels were low (lower than the bottom of the reference range) on the saliva test for the whole day but normal when I had a blood test. I've read that people with Addisons would have very low levels throughout the day, but I think this would be when they were getting to the crisis stage. I don't know what the tests would look like for someone who is in the early stages of the disease. It'd be interesting to know if anyone here suffering from it ever had the saliva test.

Have you looked into Cushing's Syndrome? I think that is associated with elevated night time cortisol levels.
Re: Why oh why???
Mar 27, 2010
[QUOTE=sochar;4213181]I understand what you mean, the cause for these things could possibly be the same. I think the problem is they don't really know for sure what causes autoimmune diseases and other mystery syndromes. There are genetic links but also there are triggers such as defficiencies, viruses, etc.

My cortisol levels were low (lower than the bottom of the reference range) on the saliva test for the whole day but normal when I had a blood test. I've read that people with Addisons would have very low levels throughout the day, but I think this would be when they were getting to the crisis stage. I don't know what the tests would look like for someone who is in the early stages of the disease. It'd be interesting to know if anyone here suffering from it ever had the saliva test.

Have you looked into Cushing's Syndrome? I think that is associated with elevated night time cortisol levels.[/QUOTE]

well i know about cushings, but I thought is was elevated cortisol all the time? Morning lower than normal cortisol and slightly higher midnight levels than normal should be adrenal fatigue shouldn't it???

I am so confused, but I can tell you I feel weak and like wearing a lead suit on & of until lunchtime or so, then normal to bad in the afternoon (mostly bad), and then anxiety and trouble sleeping & light sleep at night...

It is a vicious cycle and my salvia cortisol test was almost backwards as it should normally be. lower than normal in AM and higher than normal PM...is that cushings?





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