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Addison's Disease Message Board

Addison's Disease Board Index

Hi, I'm hoping someone here can help me - as all the doctors I have seen seem pretty clueless so am forced to self diagnose and self treat before things get any worse!

In January I was found to have a b12 deficiency and started supplementing. This seemed to throw my body out of balance (or I have an allergy). I have felt awful ever since. I got dermatitis and hyperpigmentation all over my face and my legs keep aching and twitching and pulsating (mineral tablets don't help). Worst of all my veins have become prominent all over my body, where they could not be seen before - under my eyes, the tops of my arms, my chest - everywhere. They are getting worse and worse and have started bulging. I cannot wear skirts anymore - it is sooo upsetting :(. I had a private salivary cortisol test done:
am 17.8 (12-22)
midday 1.6 (5-9)
afternoon 1.4 (3-7
midnight 0.5 (1-3)
My DHEA was normal

Has anyone else had prominent veins through lack of cortisol? And do they go back to normal on cortisol supplementation?

Could aching, twitching legs be due to lack of cortisol?

My haemaglobin (11.6 - lower range is 12), red cell count and haematocrit are a bit low and have not gone up despite my b12, iron and folate now all being high. Could this be due to my low cortisol? Could my low heamoglobin, prominent veins and low cortisol be related somehow?

Any thoughts on my saliva tests? Why would my DHEA be normal?

Can't get any hydrocortisone from my doc - so ordered some from America. I want to take it just for a few weeks to see if it helps (as a kind of diagnostic tool). I want to know what is happening to me and want to rule in/out cortisol in case I should be looking elsewhere. Would there be any harmful effects from just 2 weeks useage. Would 2 weeks be enough to see any results?

Thanks for reading - will appreciate any answers!
Are the veins on the top of your feet visible as well? I have always had very prominent veins all over my body, so I'm use to it...however, about a week ago I noticed all kinds of thinner veins ranging from red to dark blue on the top of my feet. Not sure what caused this. I'm healthy. I exercise regularly. This is unfortunate because I was looking forward to wearing sandals this summer. I am going to the doctor on Friday. My foot has also been feeling a little numb. Hopefully, they can find out what's wrong.
My feet veins have been fairly prominent my entire life, but now I'm noticing broken capillaries all over. I am going to make an appointment with a dermatologist to see if there is anything I can do. I've been doing some research and it looks like the only solution is laser treatment. I've had sclerotherapy on my legs 6 years ago and it turned out great, but not sure if I want to do that on my feet. I'm due for a couple more sclerotherapy treatments on my legs, but now I'm more concerned about my feet. They look terrible. I never thought I'd ever have to worry about my feet! I'll let you know what I find out.
I've not got any circulation problems that I know about. There must be so many possible reasons why this can happen. But unfortunately none of the doctors I have asked have a clue which is why I'm trying to work it out myself. Have you had your haemaglobin checked, I remember reading somewhere that low haemoglobin can cause veins to show more - but I guess this would be all over and not just in one area. I cannot look at my body anymore. I just jump out of the shower and grab a towel quick. My veins show and bulge ALL over. I know this is a sign of a bigger problem - but what!
Hi Tammy P,
What country do you live? Is it possible to go to another DR? If you take hydrocortisone it may help but it sounds to me you also have low aldesterone(low sodium) associated with addison's, that would be causing leg cramps. Have you had your electrolyes(blood test) checked, how;s your sodium level and potassium level? How is your thyroid? Wish you well!

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