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Addison's Disease Message Board


Addison's Disease Board Index


I am new to this forum, but not new to Addison's. I had a bilateral adrenalectomy (secondary to Cushing's disease & unsuccessful pituitary surgery) March of 2008.

SO many times, I have signs & symptoms of low sodium or high potassium and I'll always be in normal range. And so many other issues that I have dealt with in the past 4 years, and the labs do not reflect my symptoms and ultimately...the docs just brush it all aside. So I have to wonder....maybe Addisonian's needs are not reflected on the normal ranges by labs. I really want to ask my primary doctor..."Really? Do you really think that you should be comparing me to lab range norms that are based on healthy individuals??? "

A few years ago, my potassium was high. I had ALL the symptoms & the ER doctors could see it. Severe muscle spasms of my entire body & heart arrythmias. They immediately took blood for testing & I was given a slow Na drip over 2 hours and the sx's went away. But the labs...came back perfectly normal. Ugh!

Recently another incident: Severe bleed post tonsillectomy. I was able to stop it, but the next day...I felt like death and finally agreed to let my family take me to the ER. They did blood tests, saline bag to increase blood volume, emergency visit to ENT to make sure no cauterization needed to be done... The next day I had obvious signs & symptoms of decreased iron & magnesium. But the hospital called that day & said my iron & magnesium was perfectly in range. I KNEW what I needed & I started supplementing anyway & started feeling better quickly.

So seriously, these lab ranges just don't seem to be of any use to me. It seems that when I'm in range, in order to feel my best, I have to be higher or lower than the norm range suggests.

Anyone out there that has had the same experience?

Cindy





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