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Addison's Disease Board Index
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... Hi everyone! I was diagnosed with Addison's more than 10 years ago. I've been on Cortisone Acetate (25 mg) since then. Now I have to replace it (it's no longer produced in our country) with Cortef (20 mg), which contains lactose. I have lactose (and gluten) intolerance (diagnosed 3 years ago, passed genetic tests), and I don't know what to do. I'm also allergic to a... (0 replies)
... Hello everyone, I'm new to this website. I have some questions to ask in regard of Addison's Disease. I've been ill for well over a year now with an unknown diagnoses. Before all this occured I used to be extremely active. I exercised about 4-6 days a week, a full time college student, and also worked part time. I can't even imagine doing any of these things now... (2 replies)
... Hello all, I hope everyone is feeling and doing their very best. I am new to the board. I have been diagnosed with Addison's since 1989. I have a cluster of auto immune illness. Hypothyroid since 1982, sjogren's syndrome since 2003 and lupus in 2006. It keeps me busy. I am posting today with a problem that i can't seem to get help with. I live in Canada where the... (0 replies)

... Gillian - It has taken me over 2 years to finally find an answer to what is going on with me. It all started back in Feb 03 - one morning it just started. I was in the bathroom brushing my teeth and I had a MAJOR dizzy spell. I thought that maybe it was that it had been a while since I had ate anything, but throughout that day I continued to have them. For the next 5-6... (13 replies)
... We found out that our son Sawyer had Addison's disease when he was seven years old. He had always been very healthy. In the Fall Sawyer came down with pneumonia and was really sick. He ended up getting better but never seemed to fully recover. He started to be tired all the time. His pediatrician and my husband and I thought he was just taking a long time to recover from the... (3 replies)
... Hi, From my understanding the cortisol that you take for the Addison's and the medication you take for bipolar very much act against each other. Thus an optimal adjustment for both of them is important. I am myself a patient with Addison's and Bipolar (onset shortly after Addison's diagnosis). Before I was diagnosed and probably still healthy I used to faint a lot as my... (2 replies)
... I just got my lab results from my second opinion Endocrine doctor. She said "according to the records, I don't have Addison's Disease." With that said, she didn't totally conclude her analysis. She reassured me with other possibilities. I'm kind of at a lost right now, and very frustrated. I'm assuming these are good numbers, but I have no clue. TSH................. ... (3 replies)
... Shelly, I've actually never been diagnosed with Addison's, and still have no diagnosis at all. I did see an endo a long time ago, when this first started, and she was one of the doctors that told me that my fasting glucose wasn't low, which I already knew. Back when I was having constant low blood sugar episodes throughout the day, it wasn't how LOW the sugars were, it was... (26 replies)
... Hi Tina, I'm so sorry for what your going through. I don't understand why they're doing this to you. I agree with Sadie....that if it takes driving or flying to the nearest teaching hospital or endocrinologist, then do so. If indeed this is Addison's, it could mean your life. I don't understand why more Doctor's aren't educated with the disease. The town I'm from... (26 replies)
... Ugh... It sounds like you are really struggling. Hopefully folks who respond will be able to give you some brainstorming ideas. I am sick but undiagnosed myself but my husband has Addison's (pituitary failure). I have some thoughts and I'll throw them out there. Have you had a recent full thyroid panel? I mean a TSH and FreeT4 amd Free T3 with Hashimoto's antibodies... (1 replies)
... I was thinking Crohn's too. Although I don't have the common symptom of cramps and upset stomach. My cousin has it. I wonder if stress can cause these symptoms. (4 replies)
... Hello, it doesn't sound like Addison's disease to me (though I'm not a dr) I've had Addison's disease for 18 months now, but was only diagnosed 6 months ago, went through all sorts of tests and no one could figure out what was going on.. I was never hungry, i would lose weight n not put on any.. Addison's disease is usually bought on by trauma, I got Addison's from being... (4 replies)
... My understanding of the process is this: Hypothalamus releases CRF (cortoco..something...factor) this CRF tells the Pituatary to produce ACTH (adrenocorto....something...hormone) ACTH tells the adrenal glands to produce cortisol. The chain can be broken anywhere along the pathway and based on which location the diagnosis varies. My understanding is that Addison's is the... (7 replies)
... Good Morning, I am a nursing student doing research on Addison's. I decided to do Addison's because it is something I had not previously been exposed to and knew nothing about. I have done tons of research and have spent hours reading people's stories and blogs. The one thing I can't seem to find much on is the cost to an individual with Addison's. It looks like the UK pays... (1 replies)
... What a journey you have been on. Let's cut right to the question about Addison's disease. The diagnostic test that I received is called a CORITSOL STIMULATION TEST. It helps determine the actual level of cortisol your body is producing. If I remember correctly, it requires an I.V. and careful timing of the administration of the cortisol dose, a waiting period, and a blood test... (1 replies)
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... it will be easier. I have put on a lot of weight because of the meds, but doc says it will get better when I get addison under control, once I find my magic dose. But it takes time, to learn how to take the meds. ... (20 replies)
... Hi Again! Is your name Denise? Mine's Mary Jo. So sorry to hear about your shingles. I had a bout with them, too, about two years before my Addison's diagnosis, I believe. But they weren't too painful and I haven't had them since, so I guess I've been lucky. You're right in thinking that your high BP doesn't jive with Addision's. However, my endocrinologist did not think I... (7 replies)
... Hi Chris, Welcome to Addison's Disease. I was diagnosed 10 years ago and would like to share some basics: You should feel the benefits of the cortisol supplementation right away. It's a pretty fast acting drug and the dose we get as Addison's patients is a metabolic amount, meaning it should replace/mimic the amount a healthy adrenal gland would produce. That being said,... (18 replies)
... I'm having a hard time understanding the different types of Addison's Disease. Can someone please explain it? I've been ill over a year now with an unknown cause. Although it hasn't been proven yet, I believe I have Addison's Disease. The symptoms I've been experiencing are pretty identical to adrenal deficiency (weight loss, low blood pressure, poor appetite, extreme... (1 replies)

Associated Tags: addison's disease, addisons, addisons disease, adrenal disease, adrenal insufficiency, auto immune disease, bipolar, bipolar 2, cortisol, prednisone, weight loss

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