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Addison's Disease Board Index
Pages: 1Showing 1 - 14 of 14 for post orthostatic tachycardia syndrome. (0.005 seconds)

... He said though that until I was able to get back to some basic level of health, that these symptoms would continue as they are. It is funny that in your last post you mentioned that your brother felt like his heart was stopping. I just mentioned that to my doc too. ... (85 replies)
... I have neglected my resection thread....others have been filling in for Goody but I do need to post for someone prepping for her surgery tomorrow.... ... (85 replies)
... I am so sorry to hear that you girls are having such a bad time of things this week. Please know that I continue to hold you in my thoughts & prayers. Lisa ~ Seems that only a week ago things were going so great for you. Perhaps it's only a matter of them adjusting the meds a little must be so frustrating feeling almost back to normal and then WHAM almost landing... (85 replies)

... LIsa, I too have POTS and many many other conditions. I am only 27. If you would like to email and talk to someone my email is please carefully review the posting rules - no emails ] . I know how bad life is w/this condition. My heart rate went up to 190 just standing up. It is awful. Anyway, I hope to hear from you when you feel like writing. Take care, Suz (85 replies)
... Wow Jen!!! Your story sounds EXACTLY what I am going through!!!!! They have me diagnosed with both Addison's, POTS and RSD (in both my right elbow and the back of my head). I honestly couldn't believe reading your post...Almost word for word what I went through. At this point, I am on TONS of medication. Here is what I am on: * Nadolol - For the rapid heartrate that... (85 replies)
... Hello all, I wandered onto this site by accident while doing some internet research, but thought I should stop and throw my two cents in. Lisa, I also have POTS and have been dealing with it for four years now. Unlike you I was not diagnosed until a full year after I was bed ridden. I was misdiagnosed with Addison's and depression before figuring out for myself what was... (85 replies)
... I caught your post midway through sweating in shutoff valves for the pet project. I do pretty nice work... maybe I should become a plumber! ... (85 replies)
... I have been thinking about your brother lately, and I am sorry that he is not doing well at this point. I wish that you would be able to post some good news soon! I know how hard it is to even think about enjoying yourself on a vacation when you know that a loved is suffering. ... (85 replies)
... pacemaker is in place they can safely adjust the meds wirhout his pulse decreasing to dangerous levels while sleeping. Sounds like by what you describe in your post you may be going through the same thing. ... (85 replies)
... Okay, Lisa.....Goody is getting a little worried here. See you haven't been around in over 5 days. Last post by you speaks of looking for pain management. Just wanted to let you know that Goody is thinking about you and hoping all is well. ... (85 replies)
... D Lisa, please post here with an update... ... (85 replies)
... Just thought I would post to say that I too have been diagnosed with POTS after a TTT that made my heart rate increase 40bpm upon standing. ... (85 replies)
... I thought you were still at the Mayo Clinic by your post but I see that you are home. ... (85 replies)
... Lisa, Thank God you are okay! What a horrible experience. I never imagined something so terrible would happen. I have been worried that you haven't posted but thought it was for a good reason (that you got your diagnosis and had already felt so much better yu didn't have time to post!) It is painfully ironic that such terrible things had to happen to put you in the... (85 replies)

Associated Tags: avonex, florinef, medrol, nadolol, nortriptyline, protonix, reglan, ritalin, zofran

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