It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Message Board


Addison's Disease Board Index
Pages: 1 2 3 4 5 Showing 21 - 40 of 99 for postural orthostatic tachycardia syndrome. (0.003 seconds)


... Hi Jen & Lisa :wave: Wow you guys have been busy and what I love about you two is that even though everything has turned your worlds upside down you still have great attitudes and look at things in a positive light which I truly believes makes a big difference in how things work out. Jen....what is the latest??? Are the doctors still leaning towards MS??? I hope they... (85 replies)
... Lisa, I know I haven't been a part of this discussion for a long time but wanted to just say that I am very sorry you are still not feeling well. Your vision loss is of great concern. Has anyone ever performed an MRI of your PITUITARY (not just your brain) to see if you have a mass pushing on your optic chiasm, the area where your optic nerves cross at the base of your... (85 replies)
... Hey ladies! I just thought I would send in a quick update...things are not the best. I have recently been trying to use a pill form of the Lidocaine treatment I have been getting for my arm, but it's a no go...MAJOR stomach cramps, nausea, diarehhia, and MAJOR chest pains...so, back to the IV infusions twice a week for 4 hrs each! The dizziness stuff is such a mess. It... (85 replies)

... Well just wanted to update you on what has been going on.Got good news and bad news. I went to see another neurologist (my old boss). He felt on my first exam that i did have neuro issues going on unlike the other neurologist. He felt it was demyelating disease. He did a BEAR test which checks your brain wave function which came back abnormal for 2 of the my brain wave... (85 replies)
... Oh, Jen....I am so sorry to hear how things are going lately for you. I can only imagine how this is taking it's toll on you. Thank God you have a husband who supports you so well. I feel for you being a mother myself with a disability since before my children were even born and yet it doesn't even impact my life as this condition seems to have on yours. I know that this... (85 replies)
... Well girls i'm almost at my wits end..the headaches are back full force..nothing seems to help i usually let it runs its coarse, which usually a day and overnight..starts with a bad dizzy spell. I have had blurred vision and loss of vision now at times. Cognitive skills have been having issues, can't say what i'm thinking or words come out slurred or not pronounced right. When... (85 replies)
... I am so sorry to hear that you girls are having such a bad time of things this week. Please know that I continue to hold you in my thoughts & prayers. Lisa ~ Seems that only a week ago things were going so great for you. Perhaps it's only a matter of them adjusting the meds a little bit...it must be so frustrating feeling almost back to normal and then WHAM almost landing... (85 replies)
... I ended up back at the dr today...I just can't handle the dizzy spells anymore. He gave me a good shot of cortisol to see if I needed an additional stress dose. He wants to put me in the hospital, but I said that if I don't have to be there I don't want to be. So, we are lowering my Nadolol dose to 10mg in the am and 10 mg in the pm - then we are going back to the... (85 replies)
... Well i can honestly say i have now passed out for the first time in my life. I had a really bad day Tuesday and was sleeping on the couch (thought for a short nap) which ended up being 3 hours! When i woke i took time to sit up then stand up and i didn't feel "right" wham bam everything went black and when i opened my eyes i was on the couch again..thank goodness soft landing.... (85 replies)
... I know that I shouldn't have made any "Things are going great" posts the other day...because don't you know it, Wednesday things started heading backwards. I had a Lidocaine infusion on Tuesday, which went just fine...but then on Wednesday I started to get an awful, awful headache...things slowly just started to get worse. On Thursday, I went in and had my new lump... (85 replies)
... Wow...Jen, you have had some time of it. I agree that the meds do take some time to take effect. I would definitely try what they perscribe for at least 2 weeks to a month and make adjustments from there. My brother is finding that a betablocker for the blood pressure (catapres) and an antiseizure med for the tremors and headaches is working well. I would try that combo... (85 replies)
... Hi Everyone..sorry its been a little bit. I got hospitalized for over a week again. Symptoms got increasingly worse after starting the floricef and midodrine so they sent me to another teaching regional hospital for some answers. What a waste of time that was. Basically got poked stuck and proded and was sent home with no more answers than what i went in with feeling worse... (85 replies)
... I am actually afraid to even say it...things are actually going VERY well. My dr. put me on a few new meds last week and they are doing wonders! I started taking Midodrine for my bad dizziness that I was having after I was up and walking around for 4-5 minutes. I have been taking the meds only in the morning (normally you take it 3 times a day, but not less than 4 hours... (85 replies)
... Jen & Lisa ~ How are you doing???? I have been thinking about the two of you and hoping that there is some improvements and that the meds are starting to kick in. Jen, I definitely think you should get yourself to a good teaching hospital that can treat your condition. Don't stop until you find a doctor who will find the best treatment & one that you will respond to. ... (85 replies)
... LIsa, I too have POTS and many many other conditions. I am only 27. If you would like to email and talk to someone my email is please carefully review the posting rules - no emails ] . I know how bad life is w/this condition. My heart rate went up to 190 just standing up. It is awful. Anyway, I hope to hear from you when you feel like writing. Take care, Suz (85 replies)
... Wow Jen!!! Your story sounds EXACTLY what I am going through!!!!! They have me diagnosed with both Addison's, POTS and RSD (in both my right elbow and the back of my head). I honestly couldn't believe reading your post...Almost word for word what I went through. At this point, I am on TONS of medication. Here is what I am on: * Nadolol - For the rapid heartrate that... (85 replies)
... Thanks Goody..Had a really horrible day yesterday diarrhea and vomitting with severe headaches, dizziness and chest pain. My poor husband he has been so wonserful had to help me walk it was so bad. The medications do not seem to help much anymore but still holding on to hope have only been on them a week, may just need to get in my system more. We are trying to do all the... (85 replies)
... Jen....I am so sorry to hear all that you are going through. I truly understand how frustrating it must be in seeing my brother go through the same exact thing. Although they originally diagnosed him with POTS, this second time they have splained to him that he has a defect in his sympathetic nervous system...sort of like a miswiring in which there is a break in the... (85 replies)
... Hi my name is Jen, i'm 30 yrs old and was just diagnosed with POTS this past monday.I'm married with a 3 yr old son. I was admitted in to a local hospital for testing after months of being very sick. It had started last november with uncontrolled nausea, vomitting then got worse with lightheadedness and dizziness to the point i was on my hands and knees crawling. I started... (85 replies)
... Hello all, I wandered onto this site by accident while doing some internet research, but thought I should stop and throw my two cents in. Lisa, I also have POTS and have been dealing with it for four years now. Unlike you I was not diagnosed until a full year after I was bed ridden. I was misdiagnosed with Addison's and depression before figuring out for myself what was... (85 replies)


Associated Tags: avonex, florinef, medrol, nadolol, nortriptyline, protonix, reglan, ritalin, zofran

Pages: 1 2 3 4 5

All times are GMT -7. The time now is 05:51 PM.





© 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!