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Message Board


Addison's Disease Board Index
Pages: 1 Showing 1 - 20 of 24 for prednisone pots. (0.001 seconds)


... I have primary adrenal insuffiency. Mayo said that they are more concerned with the POTS at this time. Even though when they retested over there, they said, yes, you are defintely on the low side. ... (13 replies)
... of it in the hospital! 11 lbs gone, just like that! Now I am on beta blockers. The prednisone seemed like it was working becasue it was in the same class of medications used to treat POTS. I am just concerned that what they have me on now isn't working.. ... (85 replies)
... Thanks so much for explaining your story to me. Reading your background on POTS and dizziness and your history in general was eerie...it was almost EXACTLY like mine. ... (13 replies)

... I developed pneumonia 8 weeks ago, so could POTS be from that? ... (13 replies)
... e you mentioned you suffer from POTS. I so rarely see anyone else with the same disorder as me, and was wondering if you could fill me in on your back story with POTS and your symptoms. I've been ill for over 2 years and have been diagnosed with both POTS and Celiac Disease, and Colitis. ... (13 replies)
... I am relieved that they were able to confirm your diagnosis of Addison's. I have to admit I was worried that POTS wasn't explaining everything you were experiencing. ... (13 replies)
... al on the 9th for the metryopone test and I ended up in the hospital for 11 days. I ended up being ambulanced to the Mayo Clinic on day 8 and was diagnosed with POTS 3 days later. I guess only . ... (85 replies)
... Wow Jen!!! Your story sounds EXACTLY what I am going through!!!!! They have me diagnosed with both Addison's, POTS and RSD (in both my right elbow and the back of my head). I honestly couldn't believe reading your post...Almost word for word what I went through. At this point, I am on TONS of medication. Here is what I am on: * Nadolol - For the rapid heartrate that... (85 replies)
... ld pass out. He had a tilt table test which showed the worst positive results the cardiologist and neurologist had ever seen. They diagnosed him with a form of POTS that they had never seen. He was released on lopressor and changed to topranol and functions pretty well until Saturday. ... (13 replies)
... Lisa, I really feel for you, and am praying for you. How hard it must be, especially since you have children. I am scheduled to get tests TOMORROW finally, for adrenal insufficiency. I was supposed to get them last week, but everything with the doctors is taking longer than expected. What scares me about your story is that my problems actually started with a supposed... (13 replies)
... Hey Lisa, I am reading your story and the thought that comes to mind is...has anyone worked you up for a pheochromocytoma or carcinoid? They can present with orthostatic hypotension (a sort of POTS, I think), chest pain, flushing, etc. Do a search and read about the symptoms and see if any of them fit. Your adrenals are doing funky things to you-it is just a question of... (13 replies)
... Amazing....I am just not even sure what to say. When I was in the hospital the dr said that the metryopone test came back normal. Well, I got a letter yesterday and an appointment today and the final test results came back that it is primary adrenal insufficiency. So now I have 2 MAJOR things to deal with...I am now off work until further notice. I was seen in the ER... (13 replies)
... Jen & Lisa ~ It's been rather quiet here, just thought I would check in and also give you a little update. Jen ~ I hope that the meds they started yo on for MS are continuing to give you some relief. Please give us an update so we know how you are doing. Lisa ~ You sounded quite miserable last time you posted. How is your BP doing without the evening Naldalol??? I was... (85 replies)
... on prednisone so I would hope he has some positive change. ... (85 replies)
... No big news on my brother.....hopefully the prednisone is doing itīs job. Heartland....youīre sense of humor is always intact.....of course I meant the left and believe it or not I am use to the meds now...feel as if they donīt even affect me in a bad way anymore...must be the vacation and relaxing effects :bouncing: Tom caught a 89 inch sailfish and 4 ft barracuda :D... (85 replies)
... Just checked my email and it seems that there is a slight improvement in the pericarditis my brother has but not what they had hoped. They are putting him on prednisone hoping that it will resolve some..... ... (85 replies)
... Does anyone know of a test to determine if the adrenals are calcified or whatever it is called when part or all of the adrenals are damaged beyond recovery? I am trying Dr. James Wilson's regime from his book Adrenal Fatigue. I am on 5 mg prednisone/day, 1 grain armour thyroid/day, and about 25 mg DHEA/day. 17 years ago, my doctor told me that I was one step above addison's... (1 replies)
... Hey there Kris. Thanks for the reply. I realise these things about 'too much steroid'. However, my body rips through the HC SO fast, that I get low cortisol symptoms all the time, even on my high dose! I do have slight cushings symptoms, a little puffiness around the face, and some stomach weight gain, but i was very gaunt before, very underweight.. and now I just look... (20 replies)
... Something is not right here. You can get fatigue from to much steriods, where your muscles atrophy, I can't think of the name right this minute. Look it up. Or, you need to change your prednisone, or be checked for POTS, or Hypothyroidism. Are you sure you are not Cushing from all the steriods? That can happen too. I get the feeling it isn't the HC that isn't working for you,... (20 replies)
... Katalina, I had had severe pain for several hours and when I went to the doc, he sent me right to the hospital. I don't remember what tests they might have done, this was over 30 years ago, but they said I had acute appendicitis and scheduled me for an emergency appendectomy. After the surgery is when they told me it had been gangrene and wrapped partially around my uterus. I... (13 replies)


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