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Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


Re: Update ...
Oct 26, 2015
[QUOTE=Albertakewl;5389603]But with als. Isn't all reflexes brisk? Did you have any other signs ?[/QUOTE]

Typically yes. In April I had terrible burning in ankles snd later in May i noticed fasciculations in left calf. I went to neurologist. Burning is a sensory symptom and unrelated to MND. She ran all tests: mri's blood, and emg.

Everything negative. Throughout summer i started developing muscle aches. It started in legs, then arms, stomach, neck etc.

She sent me to rheumatologist. Everything negative.

I would wake up and my muscles would be so stiff I had difficulty walking at first.

I have since developed tightness in my face and neck. I got tired of two neurologists telling me nothing serious so I met w neuromuscular guy who did emg two weeks ago and had bad emg.
Re: Update ...
Oct 26, 2015
[QUOTE=TimAlley;5389615]Typically yes. In April I had terrible burning in ankles snd later in May i noticed fasciculations in left calf. I went to neurologist. Burning is a sensory symptom and unrelated to MND. She ran all tests: mri's blood, and emg.

Everything negative. Throughout summer i started developing muscle aches. It started in legs, then arms, stomach, neck etc.

She sent me to rheumatologist. Everything negative.

I would wake up and my muscles would be so stiff I had difficulty walking at first.

I have since developed tightness in my face and neck. I got tired of two neurologists telling me nothing serious so I met w neuromuscular guy who did emg two weeks ago and had bad emg.[/QUOTE]

Wow. So do you no what caused all of this?
Has the nuerolugist mentioned neuropathy to you? Or cipd?
Have you ask for a skin biopsy? Are you showing other signs of als?





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