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Amyotrophic Lateral Sclerosis (ALS) Message Board

Amyotrophic Lateral Sclerosis (ALS) Board Index

Looking for help! Anyone that can give me some peace of mind and relieve some of this anxiety would be greatly appreciated!!

So first off, here is what happened to me in a short but sweet version. I'm going to list everything, even knowing some may not be mutually exclusive.

6-8 weeks ago my pinky toe on my right foot went numb (still is)

4 weeks ago- I had a pretty bad evening/night: my whole right arm felt weak and tired and my elbow hurt. It felt like i had the same amount of strength but can't be sure. That same night I started getting twitching all over my body.

3 weeks ago till now: the first day after that night, all of my muscles (arms and legs) felt weak/tired (mostly on my right side). I'm still getting twitches all over and the last few days one spot keeps twitching more than most (still twitching all over, including other arm, legs and even butt but hot spot is my right bicep). I still feel general tiredness in both my arms (right seems worse) and legs. It's hard to explain but it's like I just don't want to use them.

I've been to my PCP and got an MRI that came back perfectly clear. I have a neurologist appointment in 2 weeks but the stress and anxiety I'm putting on myself from fear is really hurting me. Can anyone give me some advice?

Forgot to mention that I had my right pinky tingling/numbness about 2 weeks ago. As well as a tingling on my back right shoulder blade and mild tingling on both of my cheeks. Has only happened about 3 or 4 times.

Also, my blood work came back and everything was normal except my vitamin D was low (16), and they prescribed me a vitamin d pill (50,000iu) once a week for 8 weeks and potentially low testosterone

Any help?

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