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Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


ALS Question
Aug 8, 2018
I am a 57 year old female currently suffering from extreme fatigue, weakness in my legs, ankles, hands. I was recently diagnosed with high blood pressure and prescribed losartin with a water pill (together). I was in the hospital in April of 2018 due to shortness of breath, fluid retention and high blood pressure. I can barely walk for prolonged periods of time without numbness in my left foot that extends to my knee. Breathing is still difficult when I inhale. I do have pain in my body, joint pain, deep tissue pain. The pain is constant but moderate and uncomfortable all the time.

My cardiologist did an angiogram because I had an abnormal ekg on arriving at the hospital in April. No clogged arteries and he did an echo-cardiogram which appeared to be normal. He also did a carotid artery test showing high blood pressure. He suggested that i return to my family doctor because he feel, although my heart is functioning properly based on his tests, that we are missing something. I returned to my doctor and he wants me to walk everyday for two weeks to see if we can increase my level of activity because I am sure he thinks all of this is because I am terribly out of shape. I get very sick, physically when I attempt to do any physical activity for a prolonged period of time. I can do basic physical activity, such as shower, cook a meal, walk short distances very slowly, but within a short period of time my legs and body do not want to move, they become weak and I am not sure how to explain this but I have to actually focus to get them moving. It is hard to explain these weird symptoms. I also have a weird feeling in my neck and pressure in my head with headache and feeling faint at times like I am just not getting enough oxygen to my brain.

I am a person that researches everything, so of course I have googled all my symptoms, which is not always a good thing. From sleep deprivation, diet & exercise, etc. I have changed my diet for the most part, doing what my doctors are telling me and no improvement, in fact the symptoms are the same and progressively getting worse, but not rapidly. Then I wonder can this all be in my head and stress related because the general testing has all come back normal. Oh I did have a CAT scan of my chest at the beginning of the year because I was having repetitive bronchitis so saw a pulmonologist and ran testing for COPD and asthma/allergies, with the findings being mild asthma and allergies, which that i already was aware of and placed on a steroid inhaler which as not helped any of the symptoms.

Where do I go from here, my job will be starting in a couple weeks and I have had to deal with this for several months only to be slowly declining. So where do I go from here? I try not to over emphasize my symptoms to my doctor, I dont want to sound like a hyperchondriac or just a whiner, but how can I get them to understand I am really sick and I just want to feel better and have some real answers. I feel like we have been treating symptoms without really knowing the cause.

Are these early symptoms of ALS or would this disease have already manifested to a more severe level that the doctors would know without a doubt?





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