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Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


ALS or...?
Jan 10, 2020
Hi all
I was researching Stephen Hawking for recreational purposes last Sunday and I specially searched his ALS. the article did mention few of the early symptoms of it including muscle weakness & muscle twitching (like muscle was jumping ). odd enough, I suddenly perceived that I have similar muscle weakness. Esp in the right hand and arm. therefore I was freaked out & searching on google for ALS. Which, although I am told that it is a rare disease (2 in 100,000 compared to 4 in 1,000 for cerebral palsy--which I have ) and it is very unlikely for ppl below 30 y/o to have ALS. i AM STILL SCARED BY THE ODD that I possibly will get that. I am struggling between the thoughts of "I am fine" vs "I am not" constantly. the muscle weakness worsen significantly when I am thinking badly. Soon after, I start to noticing my muscle around the body began to twitch occationally (Note, the twitching happened in my belly and chest predominately BUT NOT on arms, which I suspected weakness). same with the weakness. the twitching drastically increases with negative thoughts and reaches the peak in the lunchtime. when i am in school alone. it gets significantly better in the mid afternoon when I am done with school and until next morning
my mom try to persuade me that I don't have the disease, all i have is but anxiety. BUT I was not convinced by her, even when she talk to a neurologist in China and recieved a reply of "impossible for him to have ALS cuz He is so young"
Re: ALS or...?
Jan 10, 2020
[QUOTE=MSNik;5499882]There is a test for ALS....it is very easy to get. Talk to your CP doctor. I very much doubt you have ALS, but it does sound like you need reassurance. Make an appointment to talk to your CP doc.[/QUOTE]
The EMG?
Thereís odds
1. Why I started to show symptoms after I read something related to it? Itís not that I am unaware of my body in the past
2. I am in a stressful time prior to this event and that coincides with the symptoms of anxiety or hypochondria
3. The twitching is not spontaneous and it happens to places unrelated to the weakness part
Re: ALS or...?
Jan 10, 2020
Muscle weakness and twitching are also symptoms of anxiety.
Re: ALS or...?
Jan 10, 2020
[QUOTE=esker;5499891]Muscle weakness and twitching are also symptoms of anxiety.[/QUOTE]
But how I can distinguish them?
Plus, I have no problem writing and typing.... which didnít fits ALS
Re: ALS or...?
Jan 10, 2020
[QUOTE=esker;5499893]That's why doctors do tests.[/QUOTE]

Case closed
I went to my doctor today and he performed a grip strength test for me and have a result for completely fine muscle strength in my fingers and arms
My twitching is most likely the result of stress
I do noticed thereís some twitching inside my throat (like something is jumping inside it) no problem with swallowing nor speaking (it fade away from swallowing food and water briefly). Itís most likely because of cricopharyngeal spasmó a common symptoms of stress and anxiety and likely to persist even after I put my mind down and itís not related to ALS. The doctor convinced me by the following
1.If you have limb onset ALS you are first seeing your finger canít curl/ straight or you canít write or something fine. But you are reporting that you are weak in your arms and the test revealed nothing
2. If itís Bulbar onset you cannot swallowing anything in the first placeó the throat twitching is not going to fade away when you swallowing. Which is not your case .
3. Both muscle and throat twitching is highly related with huge stress and thatís your case
I am about 99% convinced by him





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