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Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


Re: New to board
Oct 9, 2003
Hi there.

I will do some looking out there for you. (research)

Glad you found a support group. Actually, considering the circumstances, you sound quite well emotionally. I am sure you have your ups and downs, but your attitude sounds great. I wish I could say the same for myself.

I am not an als patient, that I know of so far anyway. I am 34 years old, and a mother of two toddlers. How old are you? (if you don't mind me asking) I have horrible symptoms for the past three months. It started out as numb arms and legs. They did an MRI, which ruled out MS. But, the symptoms change each week. Now, I have tight muscles all over my body, tingling, and joint pain. And, that horrible twitching all over my body from time to time. All of these symptoms come and go, and they have no idea what it is so far. I don't have weakness, but the pain is so bad I can't lift my children sometimes. I don't sleep at night, and have cried tons thinking I have this disease.

We had a family friend that had als, and I still remember him quite fondly. He was so full of life, and it pained me to see how things changed for himself, and his family.

So, I decided that while I go through all of my many doctors appointments to discover what I have, I will try to be an advocate to those who need me. Whether it be just for support, research, a shoulder to cry on, strength...whatever. Keeps me positive, less depressed, and able to cope with the unknown. Does that make sense?

[This message has been edited by moderator2 (edited 10-10-2003).]





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