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Amyotrophic Lateral Sclerosis (ALS) Message Board

Amyotrophic Lateral Sclerosis (ALS) Board Index

Hi welcome to the boards. Sorry it is not the best reason of why you are here. My dad just recently passed away from limb on set ALS. It started in his legs and with in two years he was gone. Besides my mom, I was the primary care giver. This disease is very horrible. I wish you and your friend the best druing this hard time. I am wondering why your friend is not on Medicare? ALS patients are immediately accepted due to the fast progression of the disease. My father also took Rilutek and medicare paid for a good portion of the medicine. My dad's primary insurance company covered the rest. If your friend is in the last stages of the disease I recommend you calling a local Hopice comapny in your area. They will cover everything the patient needs 100%. Not sure about Rilutek, but it only takes one phone call to them to find out. Hospice is wonderful! They did so much for us. (if you havn't already) Please look into using them for your friend. God bless you for caring for her. It takes a great person to step up and care for someone. My thoughts are with you... :angel:

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