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Amyotrophic Lateral Sclerosis (ALS) Message Board

Amyotrophic Lateral Sclerosis (ALS) Board Index

Hi eye_4_got. Lyme disease is very misunderstood by the majority of the medical community. It is very important to see a knowledgeable doctor. No test is completely reliable and results can vary by lab. It is important to be tested by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Which tests did your sister-in-law have done? From what I understand, the ELISA or titer is the least reliable test and the one most doctors run first. Ticks can transmit several co-infections also. Many people who have Lyme are co-infected. It is important to be tested for these also.

A knowledgeable doctor will consider her entire history and not rely solely on test results. Many people who have Lyme test negative.

I do not think she is grasping at straws at all. Lyme disease is often misdiagosed as many other diseases. My advice to anyone diagnosed with ALS, MS, CFS, or Fibromyalgia is to see a Lyme specialist for an evaluation. It is definitely worth looking into.

Lyme disease is the second fastest growing infectious disease after AIDS, yet nothing is being done to eduate the public and medical community. I know a woman who was diagnosed with ALS at age 36. She was told to put her affairs in order. She found out she had Lyme disease and responded to treatment.

Does your sister-in-law live in NY? Will she be seeing Dr. B. in PA?

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